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| financial assistance for sickle cell patients: Management and Therapy of Sickle Cell Disease Clarice D. Reid, Samuel Charache, Bertram H. Lubin, 1997-02 Serves as a guide for the health care worker involved in the management of patients with sickle cell disease. Represents a collective summary of experiences with therapeutic regimens rather than the by-product of controlled clinical trials. Referred to as the Bible or cookbook. Covers: child, adolescent and adult health care maint.; patient care coord.; psychosocial mgmt.; newborn screening; infection; painful events; lung; stroke; transfusion; eye; contraception and pregnancy; prenatal diagnosis; gallbladder& liver; leg ulcers; bones and joints; etc. |
| financial assistance for sickle cell patients: Assessing Genetic Risks Institute of Medicine, Committee on Assessing Genetic Risks, 1994-01-01 Raising hopes for disease treatment and prevention, but also the specter of discrimination and designer genes, genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings. |
| financial assistance for sickle cell patients: Sickle Cell Pain Samir K. Ballas, 2015-06-01 Sickle Cell Pain is a panoramic, in-depth exploration of every scientific, human, and social dimension of this cruel disease. This comprehensive, definitive work is unique in that it is the only book devoted to sickle cell pain, as opposed to general aspects of the disease. The 752-page book links sickle cell pain to basic, clinical, and translational research, addressing various aspects of sickle pain from molecular biology to the psychosocial aspects of the disease. Supplemented with patient narratives, case studies, and visual art, Sickle Cell Pain’s scientific rigor extends through its discussion of analgesic pharmacology, including abuse-deterrent formulations. The book also addresses in great detail inequities in access to care, stereotyping and stigmatization of patients, the implications of rapidly evolving models of care, and recent legislation and litigation and their consequences. |
| financial assistance for sickle cell patients: A Parent's Guide to Managing Sickle Cell Disease Lola Oni, Joan Walters (College teacher), David Rees, Olu Wilkey, 2021 |
| financial assistance for sickle cell patients: Evidence-Based Management of Sickle Cell Disease M D George R Buchanan, M D M P H Araba N Afenyi-Annan, M D Samir K Ballas, 2014-09-09 Sickle cell disease can be severe and disabling. When properly treated, patients live longer and with better quality life. This is a US government publication intended to provide evidence-based guidelines for the care of these patients for the use of all concerned providers as well as patients and family members. This book is available in print here for convenience. |
| financial assistance for sickle cell patients: Expanding Underrepresented Minority Participation Institute of Medicine, National Academy of Engineering, National Academy of Sciences, Policy and Global Affairs, Committee on Science, Engineering, and Public Policy, Committee on Underrepresented Groups and the Expansion of the Science and Engineering Workforce Pipeline, 2011-07-29 In order for the United States to maintain the global leadership and competitiveness in science and technology that are critical to achieving national goals, we must invest in research, encourage innovation, and grow a strong and talented science and technology workforce. Expanding Underrepresented Minority Participation explores the role of diversity in the science, technology, engineering and mathematics (STEM) workforce and its value in keeping America innovative and competitive. According to the book, the U.S. labor market is projected to grow faster in science and engineering than in any other sector in the coming years, making minority participation in STEM education at all levels a national priority. Expanding Underrepresented Minority Participation analyzes the rate of change and the challenges the nation currently faces in developing a strong and diverse workforce. Although minorities are the fastest growing segment of the population, they are underrepresented in the fields of science and engineering. Historically, there has been a strong connection between increasing educational attainment in the United States and the growth in and global leadership of the economy. Expanding Underrepresented Minority Participation suggests that the federal government, industry, and post-secondary institutions work collaboratively with K-12 schools and school systems to increase minority access to and demand for post-secondary STEM education and technical training. The book also identifies best practices and offers a comprehensive road map for increasing involvement of underrepresented minorities and improving the quality of their education. It offers recommendations that focus on academic and social support, institutional roles, teacher preparation, affordability and program development. |
| financial assistance for sickle cell patients: Medicaid Data United States. Medicaid Bureau. Division of Analysis and Evaluation, 1977 |
| financial assistance for sickle cell patients: The Immortal Life of Henrietta Lacks Rebecca Skloot, 2010-02-02 #1 NEW YORK TIMES BESTSELLER • “The story of modern medicine and bioethics—and, indeed, race relations—is refracted beautifully, and movingly.”—Entertainment Weekly NOW A MAJOR MOTION PICTURE FROM HBO® STARRING OPRAH WINFREY AND ROSE BYRNE • ONE OF THE “MOST INFLUENTIAL” (CNN), “DEFINING” (LITHUB), AND “BEST” (THE PHILADELPHIA INQUIRER) BOOKS OF THE DECADE • ONE OF ESSENCE’S 50 MOST IMPACTFUL BLACK BOOKS OF THE PAST 50 YEARS • WINNER OF THE CHICAGO TRIBUNE HEARTLAND PRIZE FOR NONFICTION NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The New York Times Book Review • Entertainment Weekly • O: The Oprah Magazine • NPR • Financial Times • New York • Independent (U.K.) • Times (U.K.) • Publishers Weekly • Library Journal • Kirkus Reviews • Booklist • Globe and Mail Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her slave ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine: The first “immortal” human cells grown in culture, which are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions. Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave. Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family—past and present—is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of. Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah. Deborah was consumed with questions: Had scientists cloned her mother? Had they killed her to harvest her cells? And if her mother was so important to medicine, why couldn’t her children afford health insurance? Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences. |
| financial assistance for sickle cell patients: Financial Assistance by Geographic Area United States. Department of Health, Education, and Welfare. Office of the Deputy Assistant Secretary, Finance, |
| financial assistance for sickle cell patients: Records, Computers, and the Rights of Citizens United States. Department of Health, Education, and Welfare. Secretary's Advisory Committee on Automated Personal Data Systems, 1973 |
| financial assistance for sickle cell patients: Financial Assistance by Geographic Area , 1988 |
| financial assistance for sickle cell patients: Financial Assistance by Geographic Area United States. Department of Health, Education, and Welfare. Office of the Assistant Secretary, Comptroller, |
| financial assistance for sickle cell patients: Rare Diseases and Orphan Products Institute of Medicine, Board on Health Sciences Policy, Committee on Accelerating Rare Diseases Research and Orphan Product Development, 2011-04-03 Rare diseases collectively affect millions of Americans of all ages, but developing drugs and medical devices to prevent, diagnose, and treat these conditions is challenging. The Institute of Medicine (IOM) recommends implementing an integrated national strategy to promote rare diseases research and product development. |
| financial assistance for sickle cell patients: Inherited Hemoglobin Disorders Anjana Munshi, 2015-11-11 The book, Inherited Hemoglobin Disorders, describes the genetic defects of hemoglobins, disease complications, and therapeutic strategies. This book has two distinct sections. The first theme includes seven chapters devoted to the types of hemoglobinopathies, mutation spectrum, diagnostic methods, and disease complications, and the second theme includes three chapters focusing on various treatment strategies. The content of the chapters presented in the book is guided by the knowledge and experience of the contributing authors. This book serves as an important resource and review to the researchers in the field of hemoglobinopathies. |
| financial assistance for sickle cell patients: Improving Healthcare Quality in Europe Characteristics, Effectiveness and Implementation of Different Strategies OECD, World Health Organization, 2019-10-17 This volume, developed by the Observatory together with OECD, provides an overall conceptual framework for understanding and applying strategies aimed at improving quality of care. Crucially, it summarizes available evidence on different quality strategies and provides recommendations for their implementation. This book is intended to help policy-makers to understand concepts of quality and to support them to evaluate single strategies and combinations of strategies. |
| financial assistance for sickle cell patients: Crossing the Global Quality Chasm National Academies of Sciences, Engineering, and Medicine, Health and Medicine Division, Board on Health Care Services, Board on Global Health, Committee on Improving the Quality of Health Care Globally, 2019-01-27 In 2015, building on the advances of the Millennium Development Goals, the United Nations adopted Sustainable Development Goals that include an explicit commitment to achieve universal health coverage by 2030. However, enormous gaps remain between what is achievable in human health and where global health stands today, and progress has been both incomplete and unevenly distributed. In order to meet this goal, a deliberate and comprehensive effort is needed to improve the quality of health care services globally. Crossing the Global Quality Chasm: Improving Health Care Worldwide focuses on one particular shortfall in health care affecting global populations: defects in the quality of care. This study reviews the available evidence on the quality of care worldwide and makes recommendations to improve health care quality globally while expanding access to preventive and therapeutic services, with a focus in low-resource areas. Crossing the Global Quality Chasm emphasizes the organization and delivery of safe and effective care at the patient/provider interface. This study explores issues of access to services and commodities, effectiveness, safety, efficiency, and equity. Focusing on front line service delivery that can directly impact health outcomes for individuals and populations, this book will be an essential guide for key stakeholders, governments, donors, health systems, and others involved in health care. |
| financial assistance for sickle cell patients: Alzheimer's Family Support Groups Lillian Middleton, 1984 |
| financial assistance for sickle cell patients: 2017 Catalog of Federal Domestic Assistance United States. Congress. Senate. Office of Management and Budget. Executive Office of the President, 2017 Identifies and describes specific government assistance opportunities such as loans, grants, counseling, and procurement contracts available under many agencies and programs. |
| financial assistance for sickle cell patients: Autologoos Stem Cell and Bone Marrow Transplants Susan K. Stewart, 2000-03 |
| financial assistance for sickle cell patients: Ferguson Career Resource Guide for People with Disabilities, Third Edition, 2-Volume Set Facts On File, Incorporated, 2009 Each two-volume book contains four major sections: . - Introduction and Overview: Provides forewords by notables in the field and an outline of the book. - Essays: Features eight to 10 essays on topics such as workplace issues, financial aid, diversity, and more. - Directory: Contains descriptions and contact information for hundreds of organizations, schools, and associations, arranged by topic. - Further Resources/Indexes: Includes glossaries, appendixes, further reading, and indexes |
| financial assistance for sickle cell patients: Financial Assistance by Geographic Area United States. Department of Health, Education, and Welfare. Office of the Deputy Assistant Secretary, Finance, |
| financial assistance for sickle cell patients: Respite and Crisis Care , 1981 |
| financial assistance for sickle cell patients: Investing in the Health and Well-Being of Young Adults National Research Council, Institute of Medicine, Board on Children, Youth, and Families, Committee on Improving the Health, Safety, and Well-Being of Young Adults, 2015-01-27 Young adulthood - ages approximately 18 to 26 - is a critical period of development with long-lasting implications for a person's economic security, health and well-being. Young adults are key contributors to the nation's workforce and military services and, since many are parents, to the healthy development of the next generation. Although 'millennials' have received attention in the popular media in recent years, young adults are too rarely treated as a distinct population in policy, programs, and research. Instead, they are often grouped with adolescents or, more often, with all adults. Currently, the nation is experiencing economic restructuring, widening inequality, a rapidly rising ratio of older adults, and an increasingly diverse population. The possible transformative effects of these features make focus on young adults especially important. A systematic approach to understanding and responding to the unique circumstances and needs of today's young adults can help to pave the way to a more productive and equitable tomorrow for young adults in particular and our society at large. Investing in The Health and Well-Being of Young Adults describes what is meant by the term young adulthood, who young adults are, what they are doing, and what they need. This study recommends actions that nonprofit programs and federal, state, and local agencies can take to help young adults make a successful transition from adolescence to adulthood. According to this report, young adults should be considered as a separate group from adolescents and older adults. Investing in The Health and Well-Being of Young Adults makes the case that increased efforts to improve high school and college graduate rates and education and workforce development systems that are more closely tied to high-demand economic sectors will help this age group achieve greater opportunity and success. The report also discusses the health status of young adults and makes recommendations to develop evidence-based practices for young adults for medical and behavioral health, including preventions. What happens during the young adult years has profound implications for the rest of the life course, and the stability and progress of society at large depends on how any cohort of young adults fares as a whole. Investing in The Health and Well-Being of Young Adults will provide a roadmap to improving outcomes for this age group as they transition from adolescence to adulthood. |
| financial assistance for sickle cell patients: Health Professions Student Loan Program , 1984 |
| financial assistance for sickle cell patients: Federal Student Financial Aid Handbook United States. Department of Education. Office of Student Financial Assistance, 1994 |
| financial assistance for sickle cell patients: Social Security Benefits for People Living with HIV/AIDS. , 1995 |
| financial assistance for sickle cell patients: Body and Soul Alondra Nelson, 2011 Alondra Nelson recovers a lesser-known aspect of The Black Panther Party's broader struggle for social justice: health care. Nelson argues that the Party's focus on health care was practical and ideological and that their understanding of health as a basic human right and its engagement with the social implications of genetics anticipated current debates about the politics of health and race. |
| financial assistance for sickle cell patients: Pediatric Colorectal and Pelvic Reconstructive Surgery Alejandra Vilanova-Sanchez, Marc A. Levitt, 2020-02-24 This book provides comprehensive coverage of the anatomical and physiological aspects of complex colorectal and pelvic malformations. Also described are the surgical protocols for this specialized field within pediatric surgery. The benefits of high-level collaboration between surgical services when treating these anomalies are explained, as are treatment algorithms and care of complications. Includes evaluation and management of the newborn Describes surgical interventions of the newborn, and when a primary repair versus a staged approach is required Explains the value of laparoscopy and deciding in which cases to use it Looks at the importance of a transition program to adulthood Pediatric surgeons worldwide and the teams in which they work will benefit from this well illustrated and comprehensive work. |
| financial assistance for sickle cell patients: Financial Aid for the Disabled and Their Families, 2004-2006 Gail A. Schlachter, R. David Weber, 2004 Billions of dollars in financial aid have been set aside for America's largest minority: the 49 million Americans with disabilities and members of their families. In fact, more money is available today than ever before. FINANCIAL AID FOR THE DISABLED AND THEIR FAMILIES is the only publication that can put information about these funds at your finger tips. More than 1,100 funding opportunities are described in detail here. This funding is open to applicants at any level for study, research, training, travel, career development, emergencies, assistive technology, specially-adapted housing, and many other purposes. This directory was chosen as one of the best reference books of the year by Library Journal. |
| financial assistance for sickle cell patients: The Management of Sickle Cell Disease U. S. Department of Health, 2002 #1 Best Seller on Sickle Cell Disease (SCD). Sickle cell disease is a group of blood disorders passed down from parents to children. Sickle cell anemia shortens life expectancy by 30 years via bacterial infections, painful swellings, fever, arthritis, leg ulcers, eye, lung & heart damage. Over 100,000 people, mostly African-Americans, in the United States have sickle cell disease. Over 2 million people have sickle cell trait in America. It is estimated that more than 300,000 children are born each year with SCD around the world. This edition of The Management of Sickle Cell Disease (SCD) is organized into four parts: 1. Diagnosis and Counseling 2. Health Maintenance 3. Treatment of Acute and Chronic Complications 4. Special Topics. The original intent was to incorporate evidence-based medicine into each chapter, but there was variation among evidence-level scales, and some authors felt recommendations could be made, based on accepted practice, without formal trials in this rare disorder. The best evidence still is represented by randomized, controlled trials (RCTs), but variations exist in their design, conduct, endpoints, and analyses. It should be emphasized that selected people enter a trial, and results should apply in practice specifically to populations with the same characteristics as those in the trial. Randomization is used to reduce imbalances between groups, but unexpected factors sometimes may confound analysis or interpretation. In addition, a trial may last only a short period of time, but long-term clinical implications may exist. Another issue is treatment variation, for example, a new pneumococcal vaccine developed after the trial, which has not been tested formally in a sickle cell population. Earlier trial results may be accepted, based on the assumption that the change is small. In some cases, RCTs cannot be done satisfactorily (e.g., for ethical reasons, an insufficient number of patients, or a lack of objective measures for sickle cell crises). Thus the bulk of clinical experience in SCD still remains in the moderately strong and weaker categories of evidence. Not everyone has an efficacious outcome in a clinical trial, and the frequency of adverse events, such as with long-term transfusion programs or hematopoietic transplants, might not be considered. Thus, an assessment of benefit-to-risk ratio should enter into translation of evidence levels into practice recommendations. A final issue is that there may be two alternative approaches that are competitive (e.g., transfusions and hydroxyurea). In this case the pros and cons of each course of treatment should be discussed with the patient. This book is B&W copy of the government agency publication. |
| financial assistance for sickle cell patients: The Color of Rain Michael Spehn, Gina Kell Spehn, 2011-10-04 When unexpected grief brings two families together, how do they start their journey to healing? Join Michael and Gina Spehn--bestselling authors and founders of the New Day Foundation--as they tell their story of resilience, remembrance, and reliance on their shared faith. Matt Kell and Cathy Spehn had known each other since grade school. As adults, they each got married, lived in their hometown, and attended the same church. Their kids even attended school together. Matt died at home on Christmas Day after a three-year battle with cancer, leaving behind his wife, Gina, and two young boys. After attending Matt's inspirational funeral and reaching out to Gina with offers of support, Cathy was diagnosed with inoperable brain cancer. She died only 17 days later, leaving behind her husband, Michael, and three young children. In her final hours, Cathy instructed Michael to call Gina Kell. The Color of Rain illuminates the stepping stones of loss and healing that ultimately led to a joyful new life for Michael, Gina, and their five children. Their path to becoming a modern-day Brady Bunch was paved with grief, laughter, and the willingness to be restored to a new and even better life despite the inevitable resistance they faced. As you learn more about Michael and Gina's story, you'll learn: The importance of keeping God at the center of your marriage How they navigated becoming a blended family The life-changing power of faith, even on your darkest days As their dual first-person narrative reveals what it is like to walk through loss and love simultaneously, you'll have an intimate look at how Michael and Gina lived, lost, and ultimately persevered through extraordinary circumstances. Praise for The Color of Rain: The Color of Rain is a testament to God's restoration and grace. Even in our suffering, there is beauty. It rarely makes sense, but it's always true: 'He makes all things beautiful, in His time.' --Katie Davis, New York Times bestselling author of Kisses from Katie Michael and Gina Spehn's The Color of Rain is not only an instant bestseller but also an instant classic, certain to be pressed into the hands of hundreds of thousands of grieving men and women by their closest friends, for it is a book that is painfully honest about the depths of sorrow but also full of the joy of the hard path back from near despair. It is another reminder that God is there, however dark the day, and that he will comfort those who call on him. --Hugh Hewitt, bestselling author and radio host |
| financial assistance for sickle cell patients: Journal of the House of Representatives of the United States United States. Congress. House, 2005 Some vols. include supplemental journals of such proceedings of the sessions, as, during the time they were depending, were ordered to be kept secret, and respecting which the injunction of secrecy was afterwards taken off by the order of the House. |
| financial assistance for sickle cell patients: Neurology in Clinical Practice Walter George Bradley, 2004 New edition, completely rewritten, with new chapters on endovascular surgery and mitochrondrial and ion channel disorders. |
| financial assistance for sickle cell patients: Health Care Coverage for Children United States. Congress. Senate. Committee on Finance, 1990 |
| financial assistance for sickle cell patients: The Medicare Handbook , 1988 |
| financial assistance for sickle cell patients: Childhood Leukemia Nancy Keene, 2018-04-01 Approximately 4,500 children and teens are diagnosed with leukemia in the United States and Canada each year. The illness and its treatment can have a devastating effect on family, friends, classmates, and the larger community. This newly updated edition of Childhood Leukemia contains the information and support parents need during this difficult time, including:•New treatments such as immunotherapy, tailoring drugs dosages to children's genetic profiles, and ways to deal with side effects.•Advice on how to cope with procedures, hospitalization, school, family, and financial issues.•Tips for forming a partnership with the medical team.•Poignant and practical stories from family members.•Updated resources for medical information, emotional support, and financial assistance.Parents who read this book will find understandable medical information and emotional support. |
| financial assistance for sickle cell patients: Hematology Ronald Hoffman, 2005 |
| financial assistance for sickle cell patients: Unequal Treatment Institute of Medicine, Board on Health Sciences Policy, Committee on Understanding and Eliminating Racial and Ethnic Disparities in Health Care, 2009-02-06 Racial and ethnic disparities in health care are known to reflect access to care and other issues that arise from differing socioeconomic conditions. There is, however, increasing evidence that even after such differences are accounted for, race and ethnicity remain significant predictors of the quality of health care received. In Unequal Treatment, a panel of experts documents this evidence and explores how persons of color experience the health care environment. The book examines how disparities in treatment may arise in health care systems and looks at aspects of the clinical encounter that may contribute to such disparities. Patients' and providers' attitudes, expectations, and behavior are analyzed. How to intervene? Unequal Treatment offers recommendations for improvements in medical care financing, allocation of care, availability of language translation, community-based care, and other arenas. The committee highlights the potential of cross-cultural education to improve provider-patient communication and offers a detailed look at how to integrate cross-cultural learning within the health professions. The book concludes with recommendations for data collection and research initiatives. Unequal Treatment will be vitally important to health care policymakers, administrators, providers, educators, and students as well as advocates for people of color. |
| financial assistance for sickle cell patients: Childhood Cancer Honna Janes-Hodder, Nancy Keene, 2014-03-01 This second edition of the most complete parent guide available features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas. In addition, it offers day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, financial issues, and communication. Woven among the medical details and the practical advice are the voices of parents and children who have lived with cancer and its treatments. As many parents know, advice from veteran parents can be a lifeline. Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel improves the quality of life for the whole family. Having parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone. Parents who read this book will find understandable medical infomation, obtain advice that eases their daily life, and feel empowered to be strong advocates for their child. It also contains a personal treatment summary and long-term follow-up guide for your child to keep as a permanent record. |
| financial assistance for sickle cell patients: The Condition of Education, 2020 Education Department, 2021-04-30 The Condition of Education 2020 summarizes important developments and trends in education using the latest available data. The report presentsnumerous indicators on the status and condition of education. The indicators represent a consensus of professional judgment on the most significant national measures of the condition and progress of education for which accurate data are available. The Condition of Education includes an At a Glance section, which allows readers to quickly make comparisons across indicators, and a Highlights section, which captures key findings from each indicator. In addition, The Condition of Education contains a Reader's Guide, a Glossary, and a Guide to Sources that provide additional background information. Each indicator provides links to the source data tables used to produce the analyses. |
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