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| financial support for family caregivers: Families Caring for an Aging America National Academies of Sciences, Engineering, and Medicine, Health and Medicine Division, Board on Health Care Services, Committee on Family Caregiving for Older Adults, 2016-12-08 Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults. |
| financial support for family caregivers: Patient Safety and Quality Ronda Hughes, 2008 Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043). - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/ |
| financial support for family caregivers: The Caregiving Trap Pamela D. Wilson, 2015-10-06 The Caregiving Trap combines the authentic life and professional experience of Pamela D. Wilson, who provides recommendations for overwhelmed and frustrated caregivers who themselves may one day need care. The Caregiving Trap includes stories about Pamela's actual personal and professional experience along with end of chapter exercises to support caregivers. Common caregiving issues include: A sense of duty and obligation to provide care that damages family relationships Emotional and financial challenges resulting in denial of care needs Ignorance of predictive events that result in situations of crises or harm Delayed decision making and lack of planning resulting in limited choices Minimum standards of care supporting the need for advocacy |
| financial support for family caregivers: Share the Care Cappy Capossela, Sheila Warnock, 2004-11-09 You Don't Have to Do It Alone Whether you're prepared for it or not, chances are you'll take on the role of caregiver when a family member or friend is affected by a serious illness or injury, or when you find your elderly parent needs help. As you'll soon discover, the range of tasks and responsibilities involved are overwhelming. Share The Care offers a sensible and loving solution: a unique group approach that can turn a circle of ordinary people into a powerful caregiving team. Share the Care shows you how to: —Create a caregiver family from friends, real family members, neighbors, coworkers, and acquaintances. —Hold a meeting to organize your group, and introduce members to the Share The Care systems that guarantee every job will be done and no one person will have to do too much. —Discover the hidden talents within the group, make the most of their resources, cope with group issues, and stay together in the face of adversity. Included here are valuable guidelines, compassionate suggestions, and a simple-to-use workbook section that together offer support to free the patient from worry and the caregivers from burnout. Share the Care offers friends and family the best answer ever to the frequently asked question What can I do? |
| financial support for family caregivers: Retooling for an Aging America Institute of Medicine, Board on Health Care Services, Committee on the Future Health Care Workforce for Older Americans, 2008-08-27 As the first of the nation's 78 million baby boomers begin reaching age 65 in 2011, they will face a health care workforce that is too small and woefully unprepared to meet their specific health needs. Retooling for an Aging America calls for bold initiatives starting immediately to train all health care providers in the basics of geriatric care and to prepare family members and other informal caregivers, who currently receive little or no training in how to tend to their aging loved ones. The book also recommends that Medicare, Medicaid, and other health plans pay higher rates to boost recruitment and retention of geriatric specialists and care aides. Educators and health professional groups can use Retooling for an Aging America to institute or increase formal education and training in geriatrics. Consumer groups can use the book to advocate for improving the care for older adults. Health care professional and occupational groups can use it to improve the quality of health care jobs. |
| financial support for family caregivers: Already Toast Kate Washington, 2021-03-16 The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill. |
| financial support for family caregivers: Profiles in Caregiving Carol S. Aneshensel, Leonard I. Pearlin, Joseph T. Mullan, Steven H. Zarit, Carol J. Whitlatch, 1995-09-15 Given medical advances and greater understanding of healthful living habits, people are living longer lives. Proportionally speaking, a greater percentage of the population is elderly. Despite medical advances, there is still no cure for dementia, and as elderly individuals succumb to Alzheimer's Disease or related dementia, more and more people are having to care their elderly parents and /or siblings. Profiles in Caregiving is practical source of information for anyone who teaches caregiving, acts as a caregiver, or studies caregiving. This book discusses recent research on stress factors associated with caregiving, and what factors impact on successful versus non-successful adaptation to the care-giving role. This is an expanding field in gerontology, and is also of interest to personality and social psychologists studying stress and interpersonal relations. Although there are many books on the cause and treatment of dementia, there has been a book that provides a research investigation into the factors associated with effective caregiving to dementia patients. - Conceptualizes caregiving as a multistage career whose impact on the caregiver continues to be felt after in-home care has ceased - Based upon a longitudinal survey of a demographically diverse sample of principal caregivers over a three-year period - Identifies caregivers who are most at-risk for adverse adaptation to the role - Describes preventative and clinical intervention strategies - Identifies post-care risk and issues - Identifies antecedents to successful adaptation - State of the art analytic techniques - Graphic presentation of empirical findings - Renowned multidisciplinary research team |
| financial support for family caregivers: Alzheimer's Family Support Groups Lillian Middleton, 1984 |
| financial support for family caregivers: Respite and Crisis Care , 1981 |
| financial support for family caregivers: Caregiving and Home Care Mukadder Mollaoglu, 2018-02-14 The management of chronic diseases is one of the tasks of all members of the health team, and different models need to be applied in the practice of chronic care management. One of these models is home care services. There are two main sections in this book. In the first part of the section, the concept of caregiving and care at home is explained. In the second part, the responsibilities of caregivers at home and the responsibilities of caregivers of people who have health problems that occur during different periods of life are discussed. In the second section, the problems of caregivers are also included. I would like to think that what is quoted in this book, which contains examples from different cultures of the world for home care approaches, will contribute to the development of home care services. This book is presented to all health professionals working in the field of health services as well as health politics professionals and students trained in these areas. |
| financial support for family caregivers: Juggling Life, Work, and Caregiving Amy Goyer, 2015 One in four American adult face the challenges of caring for an adult friend or relative. Although caregiving can be a richly rewarding and joyful experience, the role comes with enormous responsibilities-- and pressures. This gentle guide provides practical resources and tips that are easy to find when you need them, whether you're caregiving day to day, planning for future needs, or in the middle of a crisis. Goyer offers insight, inspiration, and poignant stories and experiences of caregivers, including her own as a live-in caregiver for her parents. |
| financial support for family caregivers: Caring for Our Parents Howard Gleckman, 2009-05-26 When his mother-in-law died suddenly and his seriously ill father-in-law was left with no one to care for him, the author and his wife were thrust into the complex and overwhelming world of long-term care. Just months later his own father fell sick, and the couple struggled to help care for him too—from 1000 miles away. Over the next year-and-a-half, this ordinary family faced one crisis after another, as each day brought new struggle and pain, but also surprising rewards. They were among the 44 million Americans who are caring for elderly parents or relatives or friends with disabilities. Someone you love will almost certainly need long-term care services before they die. Nearly 70 percent of our parents will receive such help sometime during their old age—usually at home, though often in a nursing home. It will last for an average of three years, though one in five will need this assistance for five years or more. This book tells the sometimes painful, sometimes uplifting, and always compelling stories of the families who struggle every day with the care needs of their loved ones. The costs are crushing: and the weight of 77 million aging Baby Boomers will devastate our nation's already fragile system for funding this critical day-to-day assistance. How can we repair the tattered safety net that is so essential to our aged and disabled? |
| financial support for family caregivers: AARP Meditations for Caregivers Barry J. Jacobs, Julia L. Mayer, 2016-07-12 An AARP book for caregivers combining day-to-day advice and uplifting guidance in a daily meditations format. Family care giving has its challenges: emotional overload, time constraints, anxiety, burnout, missed work, adult sibling conflicts, and marital issues. AARP Meditations for Caregivers blends emotional and spiritual motivation to minimize the strains while helping caregivers view their work as a mission from the heart. Chapters are organized by theme, including topics such as accepting your feelings, knowing your limits, seeking support, and managing stress. Each reading offers a poignant meditation, an anecdote drawn from the author's personal or clinical experience, and hands-on or psychological advice to foster coping skills and a sense of fulfillment. The meditations in this dispensable book will provide you with solutions to typical care giving challenges, offer relief and renewal through mindfulness, and inspire you to find meaning and value in the work you do. /DIV |
| financial support for family caregivers: Caregiver Family Therapy Sarah Honn Qualls, Ashley A. Williams, 2013 Caring for an older family member with physical or cognitive impairments is a difficult, strenuous process. Caregivers often struggle to balance their own needs with those of the care recipient. Their relationships with family, friends, coworkers, and even the care recipient can suffer as well. As a result, family members often seek professional help to guide them through the caregiving process. This book presents Caregiver Family Therapy (CFT), a systems approach to treating families that care for an aging adult. CFT consists of three core stages: Identifying the problem Structuring caregiver roles Ensuring caregiver self-care Transition stages bridge one core stage to the next, helping caregivers structure care for the older adult, examine the impact of caregiving role structures, and consider broader effects of caregiving. As new challenges arise, the stages are repeated and the CFT process begins anew. Full of rich clinical examples, this book will help therapists and other service providers meet the complex, diverse needs of caregiving families. |
| financial support for family caregivers: Cerebral Palsy Freeman Miller, Steven J. Bachrach, 2006-05-08 When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading. |
| financial support for family caregivers: When Someone You Love Is Being Treated for Cancer: Support for Caregivers National Cancer Institute (U.S.), 2018-07-18 When Someone You Love is Being Treated for Cancer is a booklet for friends or family members giving care to a person with cancer. This booklet covers understanding the changes that come in your life with caregiving, how to cope with your feelings and ask for help, tips on caring for both your physical and emotional self, how to talk with your kids about cancer, communicating with your loved one who has cancer, and dealing with other family members and friends. Related products: Caring for the Caregiver: Support for Cancer Caregivers – ePub format only – ISBN: 9780160947520 Children with Cancer: A Guide for Parents -- ePub format only -- ISBN: 9780160947537 Coping with Advanced Cancer: Support for People with Cancer -- ePub format only ISBN: 9780160947544 Eating Hints: Before, during and after Cancer Treatment -- ePub format only --ISBN: 9780160947551 Life After Cancer Treatment: Facing Forward -- ePub format only -- ISBN: 9780160947568 Pain Control: Support for People with Cancer -- ePub format only -- ISBN: 9780160947575 Radiation Therapy and You: Support for People with Cancer --ePub format only -- ISBN: 9780160947582 Surgery Choice for Women with DCIS and Breast Cancer -- ePub format only -- ISBN: 9780160947599 Taking Part in Cancer Research Studies --ePub format only -- ISBN: 9780160947605 Understanding Breast Changes: A Health Guide for Women --ePub format only -- ISBN: 9780160947612 Understanding Cervical Changes: A Health Guide for Women -- ePub format only -- ISBN: 9780160947629 When Cancer Returns: Support for People with Cancer -- ePub format only -- ISBN: 9780160947636 When Someone You Love Has Advanced Cancer: Support for Caregivers --ePub format only -- ISBN: 9780160947643 When Someone You Love Has Completed Cancer Treatment: Facing Forward --ePub format only -- ISBN: 9780160947650 When Your Brother or Sister Has Cancer: A Guide for Teens --ePub format only -- ISBN: 9780160947674 When Your Parent Has Cancer: A Guide for Teens -- ePub format only -- ISBN: 9780160947681 |
| financial support for family caregivers: Vibrant and Healthy Kids National Academies of Sciences, Engineering, and Medicine, Health and Medicine Division, Board on Population Health and Public Health Practice, Committee on Applying Neurobiological and Socio-Behavioral Sciences from Prenatal Through Early Childhood Development: A Health Equity Approach, 2019-12-27 Children are the foundation of the United States, and supporting them is a key component of building a successful future. However, millions of children face health inequities that compromise their development, well-being, and long-term outcomes, despite substantial scientific evidence about how those adversities contribute to poor health. Advancements in neurobiological and socio-behavioral science show that critical biological systems develop in the prenatal through early childhood periods, and neurobiological development is extremely responsive to environmental influences during these stages. Consequently, social, economic, cultural, and environmental factors significantly affect a child's health ecosystem and ability to thrive throughout adulthood. Vibrant and Healthy Kids: Aligning Science, Practice, and Policy to Advance Health Equity builds upon and updates research from Communities in Action: Pathways to Health Equity (2017) and From Neurons to Neighborhoods: The Science of Early Childhood Development (2000). This report provides a brief overview of stressors that affect childhood development and health, a framework for applying current brain and development science to the real world, a roadmap for implementing tailored interventions, and recommendations about improving systems to better align with our understanding of the significant impact of health equity. |
| financial support for family caregivers: Getting Your Affairs in Order , 1988 |
| financial support for family caregivers: The Caregiver's Companion Carolyn A. Brent, 2015 A comprehensive, straightforward handbook to help family caregivers with sibling and parent-child communication, end-of-life decision making, and guidance for how to help a loved one medically, financially, and emotionally-- |
| financial support for family caregivers: Psychology and Geriatrics Benjamin A. Bensadon, 2015-04-16 Psychology and Geriatrics demonstrates the value of integrating psychological knowledge and insight with medical training and geriatric care. Leading physician and geropsychologist contributors come together to share their collective wisdom about topics that are as emotionally uncomfortable as they are universally relevant. As the world struggles to respond to unprecedented gains in life expectancy and an explosion of new retirees living with chronic health conditions, this collaboration could not be more timely. This exceptional resource is, itself, evidence that physicians and psychologists can work together to optimize truly patient-centered geriatric care. Here at last is a scientifically rigorous, evidence-based response to the aging mind and body from those most expertly trained. - Illustrates why and how psychologists must assume a more integrated role in meeting the health care needs of older patients - Confronts emotionally laden topics such as cognitively impaired driving, caregiver burden, end-of-life communication, suicide, and systemic issues such as bias, payment, and the culture of medicine - Challenges decades-long barriers to integration, from both physician and psychologist perspectives, suggesting how they can finally be overcome - Provides an innovative, practical response to academic medicine's growing emphasis on psychological and behavioral science - Demonstrates how health care reform creates a behavioral health niche that clinical psychologists are uniquely qualified to fill |
| financial support for family caregivers: The Invisible Patient: the Emotional, Financial, and Physical Toll on Family Caregivers Annalee Kruger, 2021-08-27 How can caregivers fulfill their role as a caregiver without losing themselves in the process? Fulfilling the role of family caregiver is hard work, even if chosen willingly as an act of love to another. While the emotional, physical, and spiritual toll of caregiving is well documented, the high level of self-love and self-care required within the caregiver to successfully put the needs of others first without self-destructing is not. Caregiving can be a rewarding experience for all involved, but the stress of being a caregiver can lead to burnout and exhaustion and, in some cases, financial peril IF an Aging Plan is not in place. Consequently, the stress involved in caregiving causes caregivers to put themselves and their well-being in the background and focus on their needs last. Contributing to the level of stress is the fact that many caregivers are financially contributing to their aging loved ones' needs while also caring for that loved one. All this ongoing self-sacrifice causes a phenomenon known as compassion fatigue, leading caregivers to become the invisible patient. In The Invisible Patient, senior care advisor and caregiver advocate Annalee Kruger teaches caretakers how to appreciate the blessings of being a caregiver while also looking after themselves. It is not a luxury for caregivers to practice strong self-care -- it is a necessity. Caregiving can be a positive experience IF families better understand aging, understand the disease their loved one has, learn how to improve family communication, and have an Aging Plan. The Invisible Patient provides inspiration, encouragement, and step-by-step guidance to ease the caregiving journey. Kruger leaves no stone unturned, providing personal anecdotes and scenarios about the caregiving process, and includes numerous references and resources in this guide to caring for the caregiver. |
| financial support for family caregivers: Management of Cancer in the Older Patient E-Book Arash Naeim, David Reuben, Patricia Ganz, 2011-08-17 Management of Cancer in the Older Patient, by Drs. Arash Naeim, David Reuben, and Patricia Ganz, offers the help you need to effectively diagnose, refer, and manage cancer in geriatric patients. You’ll see how to provide effective cancer screening; refer your patients to the right oncologist; deal with comorbidities, frailties, and other complications; navigate end-of-life issues; and much more. A templated, user-friendly format makes it easy to find and apply the answers you need. See how to best manage geriatric cancer patients with help from leading specialists in both geriatrics and oncology Make informed decisions as to when to refer patients to specialists. Provide the supportive care your patients and their families need on issues such as such as mental health, pain, fatigue, nausea, insomnia. Be prepared to help cancer survivors navigate their after-treatment care including adjuvant therapy, side effects, second cancers, quality of life, and other concerns. Offer accurate guidance on ethical issues like competency, end of life, hospice, the role of the caregiver, and more. |
| financial support for family caregivers: The Conscious Caregiver Linda Abbit, 2017-09-05 Linda Abbit, founder of Tender Loving Eldercare and a veteran of the caregiving industry, shares her advice on taking care of an older parent or loved one and how to handle everything that goes along with this dramatic life change. Being a caregiver can be a difficult role. It requires patience, tenderness, selflessness, and hard work. Providing care for someone, whether it’s a parent, a loved one, or as a professional requires a high level of self-love and self-care. But while it may be a rewarding experience to care for a loved one, the emotional and physical stress of caregiving can lead to burnout and exhaustion—causing caregivers to put themselves and their own well-being in the background. How can you fulfill your role as a caregiver without losing yourself? Conscious Caregiver teaches you how to navigate caring for your loved one, whether it’s full-time in-house caregiving or hiring support from outside services. With information on how to talk to your loved ones about the situation, handle the emotional stress, stay financially secure, and take the time to care for yourself, this guide can help you care for your loved one and yourself at the same time. |
| financial support for family caregivers: Counselling in General Practice Roslyn Corney, Rachel Jenkins, 2005-07-25 Many GPs now employ counsellors to help them with the psychological and emotional problems of their patients. The contributors to this book have wide experience of counsellor attachments and have been involved in developing and promoting GP counselling on a nation-wide scale. They explore the counsellor's role in general practice and investigate the issues involved, giving practical guidance which will be invaluable to those wishing to set up a counselling service. |
| financial support for family caregivers: The Kickass Single Mom Emma Johnson, 2017-10-17 When Emma Johnson's marriage ended she found herself broke, pregnant, and alone with a toddler. Searching for the advice she needed to navigate her new life as a single professional woman and parent, she discovered there was very little sage wisdom available. In response, Johnson launched the popular blog Wealthysinglemommy.com to speak to other women who, like herself, wanted to not just survive but thrive as single moms. Now, in this complete guide to single motherhood, Johnson guides women in confronting the naysayers in their lives (and in their own minds) to build a thriving career, achieve financial security, and to reignite their romantic life—all while being a kickass parent to their kids. The Kickass Single Mom shows readers how to: • Build a new life that is entirely on their own terms. • Find the time to devote to health, hobbies, friendships, faith, community and travel. • Be a joyful, present and fun mom, and proud role model to your kids. Full of practical advice and inspiration from Emma's life, as well as other successful single moms, this is a must-have resource for any single mom. |
| financial support for family caregivers: Easing the Family Caregiver Burden, Programs Around the Nation United States. Congress. Senate. Special Committee on Aging, 1999 |
| financial support for family caregivers: The Promise of Adolescence National Academies of Sciences, Engineering, and Medicine, Health and Medicine Division, Division of Behavioral and Social Sciences and Education, Board on Children, Youth, and Families, Committee on the Neurobiological and Socio-behavioral Science of Adolescent Development and Its Applications, 2019-07-26 Adolescenceâ€beginning with the onset of puberty and ending in the mid-20sâ€is a critical period of development during which key areas of the brain mature and develop. These changes in brain structure, function, and connectivity mark adolescence as a period of opportunity to discover new vistas, to form relationships with peers and adults, and to explore one's developing identity. It is also a period of resilience that can ameliorate childhood setbacks and set the stage for a thriving trajectory over the life course. Because adolescents comprise nearly one-fourth of the entire U.S. population, the nation needs policies and practices that will better leverage these developmental opportunities to harness the promise of adolescenceâ€rather than focusing myopically on containing its risks. This report examines the neurobiological and socio-behavioral science of adolescent development and outlines how this knowledge can be applied, both to promote adolescent well-being, resilience, and development, and to rectify structural barriers and inequalities in opportunity, enabling all adolescents to flourish. |
| financial support for family caregivers: Reducing the Impact of Dementia in America National Academies of Sciences Engineering and Medicine, Division of Behavioral and Social Sciences and Education, Board on Behavioral Cognitive and Sensory Sciences, Committee on the Decadal Survey of Behavioral and Social Science Research on Alzheimer's Disease and Alzheimer's Disease-Related Dementias, 2022-04-26 As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia. |
| financial support for family caregivers: Caring for Elderly Family Members United States. Women's Bureau, 1986 |
| financial support for family caregivers: Hidden Heroes Rajeev Ramchand, Terri Tanielian, Michael P. Fisher, Christine Anne Vaughan, Caroline Epley, Thomas Trail, Phoenix Voorhies, Michael William Robbins, Eric Robinson, Bonnie Ghosh-Dastidar, 2014-04 While much has been written about the role of caregiving for the elderly and chronically ill and for children with special needs, little is known about military caregivers -- the population of those who care for wounded, ill, and injured military personnel and veterans. These caregivers play an essential role in caring for injured or wounded service members and veterans. This enables those for whom they are caring to live better quality lives, and can result in faster and improved rehabilitation and recovery. Yet playing this role can impose a substantial physical, emotional, and financial toll on caregivers. This report summarizes the results of a study designed to describe the magnitude of military caregiving in the United States today, as well as to identify gaps in the array of programs, policies, and initiatives designed to support military caregivers. Improving military caregivers' well-being and ensuring their continued ability to provide care will require multifaceted approaches to reducing the current burdens caregiving may impose, and bolstering their ability to serve as caregivers more effectively. Given the systematic differences among military caregiver groups, it is also important that tailored approaches meet the unique needs and characteristics of post-9/11 caregivers.--Abstract. |
| financial support for family caregivers: Cognitive Aging Institute of Medicine, Board on Health Sciences Policy, Committee on the Public Health Dimensions of Cognitive Aging, 2015-07-21 For most Americans, staying mentally sharp as they age is a very high priority. Declines in memory and decision-making abilities may trigger fears of Alzheimer's disease or other neurodegenerative diseases. However, cognitive aging is a natural process that can have both positive and negative effects on cognitive function in older adults - effects that vary widely among individuals. At this point in time, when the older population is rapidly growing in the United States and across the globe, it is important to examine what is known about cognitive aging and to identify and promote actions that individuals, organizations, communities, and society can take to help older adults maintain and improve their cognitive health. Cognitive Aging assesses the public health dimensions of cognitive aging with an emphasis on definitions and terminology, epidemiology and surveillance, prevention and intervention, education of health professionals, and public awareness and education. This report makes specific recommendations for individuals to reduce the risks of cognitive decline with aging. Aging is inevitable, but there are actions that can be taken by individuals, families, communities, and society that may help to prevent or ameliorate the impact of aging on the brain, understand more about its impact, and help older adults live more fully and independent lives. Cognitive aging is not just an individual or a family or a health care system challenge. It is an issue that affects the fabric of society and requires actions by many and varied stakeholders. Cognitive Aging offers clear steps that individuals, families, communities, health care providers and systems, financial organizations, community groups, public health agencies, and others can take to promote cognitive health and to help older adults live fuller and more independent lives. Ultimately, this report calls for a societal commitment to cognitive aging as a public health issue that requires prompt action across many sectors. |
| financial support for family caregivers: Loving Someone Who Has Dementia Pauline Boss, 2011-06-24 Research-based advice for people who care for someone with dementia Nearly half of U.S. citizens over the age of 85 are suffering from some kind of dementia and require care. Loving Someone Who Has Dementia is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. The book is for caregivers, family members, friends, neighbors as well as educators and professionals—anyone touched by the epidemic of dementia. Dr. Boss helps caregivers find hope in ambiguous loss—having a loved one both here and not here, physically present but psychologically absent. Outlines seven guidelines to stay resilient while caring for someone who has dementia Discusses the meaning of relationships with individuals who are cognitively impaired and no longer as they used to be Offers approaches to understand and cope with the emotional strain of care-giving Boss's book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia. |
| financial support for family caregivers: Raising an Aging Parent Ken Druck, 2019-11-06 |
| financial support for family caregivers: Working Daughter Liz O'Donnell, 2019-07-31 Working Daughter provides a roadmap for women trying to navigate caring for aging parents and their careers. Using the author’s own experiences as a prime example, it’s ideal for readers who want straight talk and real advice about the challenges and rewards of eldercare while managing a career and family. |
| financial support for family caregivers: Health Professions Education Institute of Medicine, Board on Health Care Services, Committee on the Health Professions Education Summit, 2003-07-01 The Institute of Medicine study Crossing the Quality Chasm (2001) recommended that an interdisciplinary summit be held to further reform of health professions education in order to enhance quality and patient safety. Health Professions Education: A Bridge to Quality is the follow up to that summit, held in June 2002, where 150 participants across disciplines and occupations developed ideas about how to integrate a core set of competencies into health professions education. These core competencies include patient-centered care, interdisciplinary teams, evidence-based practice, quality improvement, and informatics. This book recommends a mix of approaches to health education improvement, including those related to oversight processes, the training environment, research, public reporting, and leadership. Educators, administrators, and health professionals can use this book to help achieve an approach to education that better prepares clinicians to meet both the needs of patients and the requirements of a changing health care system. |
| financial support for family caregivers: Transforming the Workforce for Children Birth Through Age 8 National Research Council, Institute of Medicine, Board on Children, Youth, and Families, Committee on the Science of Children Birth to Age 8: Deepening and Broadening the Foundation for Success, 2015-07-23 Children are already learning at birth, and they develop and learn at a rapid pace in their early years. This provides a critical foundation for lifelong progress, and the adults who provide for the care and the education of young children bear a great responsibility for their health, development, and learning. Despite the fact that they share the same objective - to nurture young children and secure their future success - the various practitioners who contribute to the care and the education of children from birth through age 8 are not acknowledged as a workforce unified by the common knowledge and competencies needed to do their jobs well. Transforming the Workforce for Children Birth Through Age 8 explores the science of child development, particularly looking at implications for the professionals who work with children. This report examines the current capacities and practices of the workforce, the settings in which they work, the policies and infrastructure that set qualifications and provide professional learning, and the government agencies and other funders who support and oversee these systems. This book then makes recommendations to improve the quality of professional practice and the practice environment for care and education professionals. These detailed recommendations create a blueprint for action that builds on a unifying foundation of child development and early learning, shared knowledge and competencies for care and education professionals, and principles for effective professional learning. Young children thrive and learn best when they have secure, positive relationships with adults who are knowledgeable about how to support their development and learning and are responsive to their individual progress. Transforming the Workforce for Children Birth Through Age 8 offers guidance on system changes to improve the quality of professional practice, specific actions to improve professional learning systems and workforce development, and research to continue to build the knowledge base in ways that will directly advance and inform future actions. The recommendations of this book provide an opportunity to improve the quality of the care and the education that children receive, and ultimately improve outcomes for children. |
| financial support for family caregivers: A Bittersweet Season Jane Gross, 2011-04-26 Just a few of the vitally important lessons in caring for your aging parent—and yourself—from Jane Gross in A Bittersweet Season As painful as the role reversal between parent and child may be for you, assume it is worse for your mother or father, so take care not to demean or humiliate them. Avoid hospitals and emergency rooms, as well as multiple relocations from home to assisted living facility to nursing home, since all can cause dramatic declines in physical and cognitive well-being among the aged. Do not accept the canard that no decent child sends a parent to a nursing home. Good nursing home care, which supports the entire family, can be vastly superior to the pretty trappings but thin staffing of assisted living or the solitude of being at home, even with round-the-clock help. Important Facts Every state has its own laws, eligibility standards, and licensing requirements for financial, legal, residential, and other matters that affect the elderly, including qualification for Medicare. Assume anything you understand in the state where your parents once lived no longer applies if they move. Many doctors will not accept new Medicare patients, nor are they legally required to do so, especially significant if a parent is moving a long distance to be near family in old age. An adult child with power of attorney can use a parent’s money for legitimate expenses and thus hasten the spend-down to Medicaid eligibility. In other words, you are doing your parent no favor—assuming he or she is likely to exhaust personal financial resources—by paying rent, stocking the refrigerator, buying clothes, or taking him or her to the hairdresser or barber. |
| financial support for family caregivers: How to Say It® to Seniors David Solie, 2004-09-07 A practical guide to bridging the generation gap. In How to Say It to Seniors, geriatric psychology expert David Solie offers help in removing the typical communication blocks many experience with the elderly. By sharing his insights into the later stages of life, Solie helps in understanding the unique perspective of seniors, and provides the tools to relate to them. |
| financial support for family caregivers: Long-term Care and the Role of Family Caregivers United States. Congress. Senate. Special Committee on Aging, 2000 |
| financial support for family caregivers: Meeting the Needs of Family Caregivers of Veterans United States. Congress. House. Committee on Veterans' Affairs. Subcommittee on Health, 2010 |
Caregiver Resource - Legal and Financial Planning Services
Primary Family Caregivers of Veterans actively enrolled in PCAFC are eligible for legal and financial planning services. Primary Family Caregivers can also benefit from web-based …
Financial Support Resources for Caregivers
In addition to financial support, you may be able to receive tax credits for the care you provide by claiming medical expenses on your taxes and/or claiming the care recipient as a dependent. …
2022 National Strategy to Support Family Caregivers: Actions …
It contains more than 150 suggested actions that states, communities, and other public and private stakeholders can take to holistically recognize, assist, include, support, and engage …
Policy Brief: The Role of Medicaid in Supporting Family …
Medicaid has emerged as the nation’s primary source of support for these caregivers, making it possible for many Americans to receive care in their homes rather than in costly nursing facilities.
Financial Assistance for Family Caregivers - ARCH National …
Veterans and their caregivers may be eligible for the Program of Comprehensive Assistance for Family Caregivers. In addition to respite, mental health services, travel expenses, and access …
Veterans A ̃airs Program of Comprehensive Assistance for …
The U.S. Department of Veterans Affairs (VA) Program of Comprehensive Assistance for Family Caregivers (PCAFC) offers enhanced clinical support for caregivers of eligible Veterans who …
NATIONAL FAMILY CAREGIVER SUPPORT PROGRAM
The National Family Caregiver Support Program (NFCSP), established in 2000, provides grants to States and Territories, based on their share of the population
Resource Guide for Family Caregivers - aging.maryland.gov
The 2022 National Strategy to Support Family Caregivers provides a first-ever roadmap to improve access to information, services, and resources for family caregivers of all ages — from …
Veterans Affairs Program of Comprehensive Assistance for …
VA will apply a specific percentage of the monthly stipend rate based on the amount and degree of personal care services provided to the eligible Veteran by the Primary Family Caregiver. The …
Financial caregiving: What you need to know. - TIAA
Stepping into a caregiver role at an early age has heightened financial implications, because it occurs when many people have lower salaries and should be taking the biggest strides in their …
2024 Report to Congress - ACL Administration for Community …
It presented a vision, established goals, and provided recommendations for ensuring family caregivers have the support and resources they need. The strategy also included …
NATIONAL STRATEGY TO SUPPORT FAMILY CAREGIVERS
National Strategy to Support Family Caregivers Action Guide for Counties | 7 Meals on Wheels: A program that delivers nutritious meals to homebound older adults to alleviate hunger and …
vices Tips and ResouRces foR caRegiveRs - Centers for …
family Care navigator is a state-by-state resource developed by the Family Caregiver Alliance. It includes services for family caregivers, as well as help for older or disabled adults living at …
National Strategy to Support Family Caregivers Action Guide
organizations, and service providers can step in and support family caregivers as they adapt to new roles and challenges, funded by The Elizabeth Dole Foundation
2022 National Strategy to Support Family Caregivers
The National Strategy to Support Family Caregivers was developed by the Recognize, Assist, Include, Support, and Engage (RAISE) Act Family Caregiving Advisory Council and the …
Caregiving May Create Physical, Emotional and Financial Strain
Family caregivers, through the assistance they provide, enable many people with disabilities to live in their own homes and communities. However, caregiving may create physical, emotional, …
FAMILY CAREGIVING ADVISORY COUNCIL FINAL …
promising and evidence-supported practices to support family caregivers in the delivery of healthcare and long -term services and supports.
2022 National Strategy to Support Family Caregivers
Family caregivers include people of all ages, from youth to grandparents; people with and without disabilities; people providing care from a distance; and people meeting a wide variety of needs. …
2022 National Strategy to Support Family Caregivers: Federal …
Given that many federal programs and initiatives to support family caregivers operate independently of each other, the federal actions outlined in this document make up the first …
2022 National Strategy to Support Family Caregivers
Family caregivers include people of all ages, from youth to grandparents; people with and without disabilities; people providing care from a distance; and people meeting a wide variety of needs. …
Caregiver Resource - Legal and Financial Planning Services
Primary Family Caregivers of Veterans actively enrolled in PCAFC are eligible for legal and financial planning services. Primary Family Caregivers can also benefit from web-based …
Financial Support Resources for Caregivers
In addition to financial support, you may be able to receive tax credits for the care you provide by claiming medical expenses on your taxes and/or claiming the care recipient as a dependent. …
2022 National Strategy to Support Family Caregivers: …
It contains more than 150 suggested actions that states, communities, and other public and private stakeholders can take to holistically recognize, assist, include, support, and engage …
Policy Brief: The Role of Medicaid in Supporting Family …
Medicaid has emerged as the nation’s primary source of support for these caregivers, making it possible for many Americans to receive care in their homes rather than in costly nursing facilities.
Financial Assistance for Family Caregivers - ARCH National …
Veterans and their caregivers may be eligible for the Program of Comprehensive Assistance for Family Caregivers. In addition to respite, mental health services, travel expenses, and access …
Veterans A ̃airs Program of Comprehensive Assistance for …
The U.S. Department of Veterans Affairs (VA) Program of Comprehensive Assistance for Family Caregivers (PCAFC) offers enhanced clinical support for caregivers of eligible Veterans who …
NATIONAL FAMILY CAREGIVER SUPPORT PROGRAM
The National Family Caregiver Support Program (NFCSP), established in 2000, provides grants to States and Territories, based on their share of the population
Resource Guide for Family Caregivers - aging.maryland.gov
The 2022 National Strategy to Support Family Caregivers provides a first-ever roadmap to improve access to information, services, and resources for family caregivers of all ages — …
Veterans Affairs Program of Comprehensive Assistance …
VA will apply a specific percentage of the monthly stipend rate based on the amount and degree of personal care services provided to the eligible Veteran by the Primary Family Caregiver. …
Financial caregiving: What you need to know. - TIAA
Stepping into a caregiver role at an early age has heightened financial implications, because it occurs when many people have lower salaries and should be taking the biggest strides in their …
2024 Report to Congress - ACL Administration for Community …
It presented a vision, established goals, and provided recommendations for ensuring family caregivers have the support and resources they need. The strategy also included …
NATIONAL STRATEGY TO SUPPORT FAMILY CAREGIVERS
National Strategy to Support Family Caregivers Action Guide for Counties | 7 Meals on Wheels: A program that delivers nutritious meals to homebound older adults to alleviate hunger and …
vices Tips and ResouRces foR caRegiveRs - Centers for …
family Care navigator is a state-by-state resource developed by the Family Caregiver Alliance. It includes services for family caregivers, as well as help for older or disabled adults living at …
National Strategy to Support Family Caregivers Action Guide
organizations, and service providers can step in and support family caregivers as they adapt to new roles and challenges, funded by The Elizabeth Dole Foundation
2022 National Strategy to Support Family Caregivers
The National Strategy to Support Family Caregivers was developed by the Recognize, Assist, Include, Support, and Engage (RAISE) Act Family Caregiving Advisory Council and the …
Caregiving May Create Physical, Emotional and Financial Strain
Family caregivers, through the assistance they provide, enable many people with disabilities to live in their own homes and communities. However, caregiving may create physical, …
FAMILY CAREGIVING ADVISORY COUNCIL FINAL …
promising and evidence-supported practices to support family caregivers in the delivery of healthcare and long -term services and supports.
2022 National Strategy to Support Family Caregivers
Family caregivers include people of all ages, from youth to grandparents; people with and without disabilities; people providing care from a distance; and people meeting a wide variety of …
2022 National Strategy to Support Family Caregivers: …
Given that many federal programs and initiatives to support family caregivers operate independently of each other, the federal actions outlined in this document make up the first …
2022 National Strategy to Support Family Caregivers
Family caregivers include people of all ages, from youth to grandparents; people with and without disabilities; people providing care from a distance; and people meeting a wide variety of …
