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| big loud therapy parkinson's: Facing the Music David Loud, 2022-02-01 Musical Director and arranger David Loud, a legendary Broadway talent, recounts his wildly entertaining and deeply poignant trek through the wilderness of his childhood and the edge-of-your-seat drama of a career on, in, under, and around Broadway for decades. He reveals his struggle against the ravages of Parkinson's and triumphs repeatedly. This memoir is also a remarkable love letter to music. Loud is the 'Ted Lasso' of the theater business, ever the optimist! “‘Music has consequences,’ a wise teacher once told a young David Loud; so does a story well-told and a life fully-lived. I lost count of how many times I laughed, cried, and laugh-cried reading this wonderful, wry, intimate, and inspiring book. David wields a pen like he wields a baton, with perfect timing, exquisite phrasing, and enormous heart.” — David Hyde Pierce, actor, Frasier, Spamalot, Curtains “Beautifully written, filled with vivid details, braided with love and loss and wit and the perspective of someone with an utterly unique story to tell. -- Lynn Ahrens, lyricist, Ragtime, Once on This Island, Anastasia “Luminous and surprising, an extremely honest memoir of a life lived in the world of Broadway musicals, by one of the theatre’s most gifted conductors. I can’t think of another book quite like it.” -- John Kander, composer, Cabaret, Chicago, New York, New York Unforgettably entertaining and emotionally revealing, Loud is pitch-perfect as he describes his path to the podium, from a stage-struck kid growing up at a school devoted to organic farming and mountain climbing, to the searing formative challenges he faces during adolescence, to the remarkable behind-the-scenes stories of his Broadway trials and triumphs. Skilled at masking his fears, Loud achieves his dream until one fateful opening night, when in the midst of a merry, dressing room celebration, he can no longer deny reality and must suddenly, truly, face the music. |
| big loud therapy parkinson's: Occupational Therapy for People with Parkinson's Disease Ana Aragon, Jill Kings, 2010 These practice guidelines draw upon the widest relevant knowledge and evidence available to describe and inform contemporary best practice occupational therapy for people with Parkinson's disease. They include practical examples of interventions to allow occupational therapists to apply new treatments to their practice. |
| big loud therapy parkinson's: The Adult Speech Therapy Workbook Chung Hwa Brewer, 2021-04 THE ADULT SPEECH THERAPY WORKBOOK is your go-to resource for handouts and worksheets. It was designed for speech therapists new to adult speech therapy and covers the most common diagnoses and disorders across all adult speech therapy settings, from hospitals, to skilled nursing facilities, to home health. This workbook is packed with over 580 pages of practical, evidenced-based treatment material. |
| big loud therapy parkinson's: The Dysarthrias Malcolm Ray McNeil, John C. Rosenbek, Arnold Elvin Aronson, 1984 |
| big loud therapy parkinson's: Neurorehabilitation in Parkinson's Disease Marilyn Trail, Elizabeth Protas, Eugene C. Lai, 2008 'Neurorehabilitation in Parkinson's Disease' serves as a reference for the treatment of patients with Parkinson's disease. In addition to providing treatment models for physical therapy, occupational therapy, & speech-language pathology, the text covers topics such as review of pathophysiology, & symptomatology. |
| big loud therapy parkinson's: Communication and Swallowing in Parkinson Disease Deborah Theodoros, Lorraine Ramig, 2011-05-20 Numerous books have been written on various medical aspects of Parkinson's Disease. Until now, however, there has not been published a text which focuses specifically on the debilitating speech, cognitive-linguistic, and swallowing disorders associated with this disease. The current body of literature in the field of speech pathology pertaining to the description, assessment, and management of the communication and swallowing difficulties experienced by people with Parkinson's Disease is extensive. However, the majority of this literature is published in research journal article format, or as individual book chapters in various books. The first of its kind, Communication and Swallowing Disorders in Parkinson's Disease condenses and organizes this information into an accessible format in order to provide a comprehensive understanding of these disorders and their management in this clinical population. |
| big loud therapy parkinson's: Neuropalliative Care Claire J. Creutzfeldt, Benzi M. Kluger, Robert G. Holloway, 2018-10-01 This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas. |
| big loud therapy parkinson's: Spasmodic Torticollis Handbook Karen Frei, MD, Mayank Pathak, MD, Dr. Daniel Troung, MD, 2003-07-01 Spasmodic torticollis, also known as cervical dystonia, affects about three people in 10,000, or an estimated 85,000 individuals in the United States alone. Despite this, there has been until now a lack of information outside of the professional medical literature for use by individuals with this disorder and their families. This book provides comprehensive information on the disorder for people with spasmodic torticollis and those close to them. Medical terms and concepts are introduced sequentially and then used as building blocks for the later discussion. Beginning with a clear definition of the disorder, opening chapters categorize this neurologic disease as one of the broader category of movement disorders, and differentiate it from other conditions with which it is often confused. The authors then present a stepwise introduction to the relevant anatomy and physiology of the nervous system and neck. They draw on the experiences of their patients to build a progressive depiction of the experiences an individual might have as he or she goes through the initial onset of symptoms, progression of the disorder, seeking medical care, diagnosis, treatment, and subsequent outcome. Personal vignettes from the experiences of selected patients are provided where they illustrate particular points in the discussion. Subsequent chapters discuss various modes of treatment for spasmodic torticollis. Prior to the mid-1980?s, there were no specific treatments for this disorder. Nearly all treatment consisted of using oral medications that were primarily intended for other medical conditions. Since most of these medications are still in use, and a few new ones have been added, a chapter is devoted to detailing them and discussing the general principles of medication therapy. During the past decade, chemodenervation using botulinum toxin has become the primary and most effective treatment for spasmodic torticollis. For those few patients who require surgery, a description is provided of the neurosurgical techniques developed during the last twenty years specifically for its treatment. The final chapter is a manual of therapeutic rehabilitation exercises designed to alleviate the symptoms of spasmodic torticollis. These exercises can be performed by most patients with no assistance and a bare minimum of equipment. Since each person?s case of spasmodic torticollis is different, only certain of the exercises may be appropriate for any given individual. They should be undertaken only after discussion with your physician. These exercises are accompanied by detailed illustrations that emphasize the particular muscles relevant to each posture or movement. About the Authors: Dr. Pathak is a neurologist with a special interest in the neurologic rehabilitation of movement disorders, especially spasmodic torticollis. Dr. Frei is a neurologist specialized in the field of neurogenetics, and has conducted clinical trials on a number of movement disorders, including spasmodic torticollis. Dr. Truong is a neurologist and movement disorders specialist. He has conducted active research in the management of movement disorders, including spasmodic torticollus. He was one of the pioneers in the use of botulinum toxin to manage this condition, and has lectured worldwide on the management of movement disorders. |
| big loud therapy parkinson's: Parkinson's Disease Management through ICT Joan Cabestany, Angels Bayes, 2022-09-01 Parkinson's Disease (PD) is a neurodegenerative disorder that manifests with motor and non-motor symptoms. PD treatment is symptomatic and tries to alleviate the associated symptoms through an adjustment of the medication. As the disease is evolving and this evolution is patient specific, it could be very difficult to properly manage the disease.The current available technology (electronics, communication, computing, etc.), correctly combined with wearables, can be of great use for obtaining and processing useful information for both clinicians and patients allowing them to become actively involved in their condition.Parkinson's Disease Management through ICT: The REMPARK Approach presents the work done, main results and conclusions of the REMPARK project (2011 – 2015) funded by the European Union under contract FP7-ICT-2011-7-287677. REMPARK system was proposed and developed as a real Personal Health Device for the Remote and Autonomous Management of Parkinson’s Disease, composed of different levels of interaction with the patient, clinician and carers, and integrating a set of interconnected sub-systems: sensor, auditory cueing, Smartphone and server. The sensor subsystem, using embedded algorithmics, is able to detect the motor symptoms associated with PD in real time. This information, sent through the Smartphone to the REMPARK server, is used for an efficient management of the disease. |
| big loud therapy parkinson's: Parkinson's Treatment Michael S. Okun, 2013-03-16 Addresses all of the new and emerging Parkinson's disease therapies (stem cells, gene therapy, optogenetics, etc.). |
| big loud therapy parkinson's: Rehabilitation in Movement Disorders Robert Iansek, Meg E. Morris, 2013-05-23 Provides a broad overview of current rehabilitation approaches, emphasizing the need for interdisciplinary management and focussing on deliverable outcomes. |
| big loud therapy parkinson's: Balance Dysfunction in Parkinson's Disease Martina Mancini, John G. Nutt, Fay B. Horak, 2019-09-14 Balance Dysfunction in Parkinson's Disease: Basic Mechanisms to Clinical Management presents the most updated information on a variety of topics. Sections help clinicians evaluate the types of balance control issues, dynamic balance dysfunction during turning, and the effects of medication, deep brain stimulation, and rehabilitation intervention on balance control. This book is the first to review the four main postural control systems and how they are affected, including balance during quiet stance, reactive postural adjustments to external perturbations, anticipatory postural adjustments in preparation for voluntary movements, and dynamic balance control during walking and turning. In addition, the book's authors summarize the effects of levodopa, deep brain stimulation, and rehabilitation intervention for each balance domain. This book is recommended for anyone interested in how and why balance control is affected by PD. - Provides the first comprehensive review of research to date on balance dysfunctions in Parkinson's disease - Discusses how to translate current neuroscience research into practice regarding neural control of balance - Provides evidence on the effects of current interventions on balance control |
| big loud therapy parkinson's: Clinical Management of Neurogenic Communicative Disorders Donnell F. Johns, 1991 |
| big loud therapy parkinson's: Handbook of Parkinson's Disease, Fifth Edition Rajesh Pahwa, Kelly E. Lyons Ph.D., 2013-05-09 Highly Commended, BMA Medical Book Awards 2014 This volume has long prevailed as one of the leading resources on Parkinson's disease (PD). Fully updated with practical and engaging chapters on pathology, neurochemistry, etiology, and breakthrough research, this source spans every essential topic related to the identification, assessment, and treatment of PD. Reflecting the many advances that have taken place in the management of PD, this volume promotes a multidisciplinary approach to care and supplies new sections on the latest pharmacologic, surgical, and rehabilitative therapies, as well as essential diagnostic, imaging, and nonmotor management strategies. New to this edition: • Early identification of premotor symptoms • Potential disease modification agents • Physical and occupational therapy |
| big loud therapy parkinson's: Non-Motor Symptoms of Parkinson's Disease K. Ray Chaudhuri, Eduardo Tolosa, Anthony Henry Vernon Schapira, W. Poewe, 2014 Patients with Parkinson's disease (PD) are known to suffer from motor symptoms of the disease, but they also experience non-motor symptoms (NMS) that are often present before diagnosis or that inevitably emerge with disease progression. The motor symptoms of Parkinson's disease have been extensively researched, and effective clinical tools for their assessment and treatment have been developed and are readily available. In contrast, researchers have only recently begun to focus on the NMS of Parkinson's Disease, which are poorly recognized and inadequately treated by clinicians. The NMS of PD have a significant impact on patient quality of life and mortality and include neuropsychiatric, sleep-related, autonomic, gastrointestinal, and sensory symptoms. While some NMS can be improved with currently available treatments, others may be more refractory and will require research into novel (non-dopaminergic) drug therapies for the future. Edited by members of the UK Parkinson's Disease Non-Motor Group (PD-NMG) and with contributions from international experts, this new edition summarizes the current understanding of NMS symptoms in Parkinson's disease and points the way towards future research. |
| big loud therapy parkinson's: Saving Milly Morton Kondracke, 2002-05-28 Morton Kondracke never intended to wed Millicent Martinez, but the fiery daughter of a radical labor organizer eventually captured his heart. They married, raised two daughters, and loved and fought passionately for twenty years. Then, in 1987, Milly noticed a glitch in her handwriting, a small tremor that would lead to the shattering diagnosis of Parkinson’s disease. Saving Milly is Kondracke’s powerfully moving chronicle of his vital and volatile marriage, one that has endured and deepened in the face of tragedy; it also follows his own transformation from careerist to caregiver and activist, a man who will “fight all the way, without pause or rest, to ‘save’ his beloved Milly.” * (* Linda Bowles, The Washington Times) |
| big loud therapy parkinson's: The Neurology of Religion Alasdair Coles, Joanna Collicutt, Joanna Collicutt McGrath, 2019-11-07 Examines what can be learnt about the brain mechanisms underlying religious practice from studying people with neurological disorders. |
| big loud therapy parkinson's: Disorders of Motor Speech Donald A. Robin, Kathryn M. Yorkston, David R. Beukelman, 1996 |
| big loud therapy parkinson's: The Peripatetic Pursuit of Parkinson Disease Lindy Ashford, Parkinsons Creative Collective, Laura Brooks, May Griebel, Linda Herman, Katherine Huseman, Pamela Kell, Girija Muralidhar, Peggy Willocks, Bob Cummings, Paula Wittekind, 2013-10-09 Personal in approach, beautiful in design, global in scope, The Peripatetic Pursuit of Parkinson Disease envisions a better world for people with Parkinson disease (PD). Developed by the Parkinsons Creative Collective (all of whom have PD), it is an anthology of the experiences of over 120 experts at living with PD -- the patients themselves. Join them on a journey from diagnosis, to informed patient, to empowered advocate. Filled with information and inspiration, it's a color-illustrated encyclopedia of PD from the patients' point of view. With nearly one quarter of the voices from around the world, it encourages discussion while it speaks to those newly diagnosed as well as to those who have lived with PD for years. Even medical professionals reading the book have found new perspectives on what it is like to live with PD. It delivers much more than the basics about this chronic, progressive, neurological disease. The authors share their stories and strategies on how to improve health, quality of life, and wellness in spite of PD. They also present opinions on how to speed the development of new treatments and how to face other life challenges that come with PD. --For those with PD, it's a support group between two covers; and for everyone else, it's a window into the world of PD. |
| big loud therapy parkinson's: No Time Like the Future Michael J. Fox, 2020-11-17 INSTANT NEW YORK TIMES BESTSELLER A moving account of resilience, hope, fear and mortality, and how these things resonate in our lives, by actor and advocate Michael J. Fox. The entire world knows Michael J. Fox as Marty McFly, the teenage sidekick of Doc Brown in Back to the Future; as Alex P. Keaton in Family Ties; as Mike Flaherty in Spin City; and through numerous other movie roles and guest appearances on shows such as The Good Wife and Curb Your Enthusiasm. Diagnosed at age 29, Michael is equally engaged in Parkinson’s advocacy work, raising global awareness of the disease and helping find a cure through The Michael J. Fox Foundation for Parkinson’s Research, the world’s leading non-profit funder of PD science. His two previous bestselling memoirs, Lucky Man and Always Looking Up, dealt with how he came to terms with the illness, all the while exhibiting his iconic optimism. His new memoir reassesses this outlook, as events in the past decade presented additional challenges. In No Time Like the Future: An Optimist Considers Mortality, Michael shares personal stories and observations about illness and health, aging, the strength of family and friends, and how our perceptions about time affect the way we approach mortality. Thoughtful and moving, but with Fox’s trademark sense of humor, his book provides a vehicle for reflection about our lives, our loves, and our losses. Running through the narrative is the drama of the medical madness Fox recently experienced, that included his daily negotiations with the Parkinson’s disease he’s had since 1991, and a spinal cord issue that necessitated immediate surgery. His challenge to learn how to walk again, only to suffer a devastating fall, nearly caused him to ditch his trademark optimism and “get out of the lemonade business altogether.” Does he make it all of the way back? Read the book. |
| big loud therapy parkinson's: Locomotion and Posture in Older Adults Fabio Augusto Barbieri, Rodrigo Vitório, 2017-02-07 This book is an attempt to advance the discussion and improve our understanding about the effects of aging and movement disorders on motor control during walking and postural tasks. Despite these activities are performed daily, there is a high requirement of motor and neural systems in order to perform both tasks efficiently. Both walking and posture require a complex interaction of musculoskeletal and neural systems. However, the mechanisms used to control these tasks, as well as how they are planned and coordinated, are still a question of discussion among health professionals and researchers. In addition, this discussion is more interesting when the effects of aging are included in the context of locomotion and the postural control. The number of older individuals is 841 million in 2015, which is four times higher than the 202 million that lived in 1950. Aging causes many motor, sensorial and neural deficits, which impair locomotion and postural control in the elderly. The severity of this framework is worsened when the aging goes along with a movement disorder, such as Parkinson disease, Chorea, Dystonia, Huntington disease, etc. Therefore, the aim of this book is to highlight the influence of different aspects on planning, controlling and performing locomotion and posture tasks. In attempting to improve current knowledge in this field, invited authors present and discuss how environmental, sensorial, motor, cognitive and individual aspects influence the planning and performance of locomotor and postural activities. The major thrust of the book is to address the mechanisms involved in controlling and planning motor action in neurological healthy individuals, as well as in those who suffer from movement disorders or face the effects of aging, indicating the aspects that impair locomotion and postural control. In addition, new technologies, tools and interventions designed to manage the effects of aging and movement disorders are presented in the book. |
| big loud therapy parkinson's: Parkinson's Disease National Collaborating Centre for Chronic Conditions (Great Britain), 2006 |
| big loud therapy parkinson's: Living With Parkinson's Robert K. Zimmerman Ed. D., 2015-10-05 When anyone is diagnosed with a long term, chronic, and debilitating disease such as Parkinson’s disease, it can be devastating. The uncertainty of the future can be extremely difficult to deal with. This book is meant to share one family’s experience with Parkinson’s. This book is not a medical treatise but rather a book filled with suggestions that will help the reader cope with the disease over a long period of time. The most important lesson I learned from having the disease for 26 years is to keep a positive mental attitude. This book also discusses deep brain stimulation surgery and how the surgery helped me. The book covers the whole 26 years my family has lived with Parkinson’s disease. Proceeds from the sale of the book will benefit the Parkinson's Disease Foundation's research programs. |
| big loud therapy parkinson's: Delay the Disease David Zid, 2007-01-01 The exercise program is a collaboration between a certified personal trainer, David Zid, a nurse, Jackie Russell and an orthopedic surgeon, Dr. Thomas Mallory, who retired due to Parkinson's disease. The idea was sparked when Dr. Mallory discovered that a daily exercise routine created for him by Zid seemed to dramatically improve his symptoms. The result was a book detailing a fitness plan for Parkinson's patients at every stage of the disease. The 70 page spiral bound book lays flat enabling the person to easily consult each Parkinson's specific exercise which is illustrated in full color with a detailed description on how to perform the exercise. Emphasis is placed on activities of daily living that frequently become a challenge to those with Parkinson's, such as rising from a chair or moving around in crowds. The program is well thought out and works the entire body. |
| big loud therapy parkinson's: Old Age Michael Kinsley, 2016-04-26 Vanity Fair columnist Michael Kinsley escorts his fellow Boomers through the door marked Exit. The notorious baby boomers—the largest age cohort in history—are approaching the end and starting to plan their final moves in the game of life. Now they are asking: What was that all about? Was it about acquiring things or changing the world? Was it about keeping all your marbles? Or is the only thing that counts after you’re gone the reputation you leave behind? In this series of essays, Michael Kinsley uses his own battle with Parkinson’s disease to unearth answers to questions we are all at some time forced to confront. “Sometimes,” he writes, “I feel like a scout from my generation, sent out ahead to experience in my fifties what even the healthiest Boomers are going to experience in their sixties, seventies, or eighties.” This surprisingly cheerful book is at once a fresh assessment of a generation and a frequently funny account of one man’s journey toward the finish line. “The least misfortune can do to make up for itself is to be interesting,” he writes. “Parkinson’s disease has fulfilled that obligation.” |
| big loud therapy parkinson's: Parkinson's Diva Maria De Leon, 2015-06-29 Parkinson's disease affects all sides of you: your inside, your outside, and your right side-that is, the side where you feel positive, balanced, and beautiful. How do you find that edge when you're not feeling very sharp at all? Parkinson's Diva is a personal and professional accounting of a young Parkinson's doctor's experience with the disease in all realms of her life . . . from doctor, caregiver, and ultimately as a young Parkinson's patient herself. Not only does Dr. Maria De Leon cover important basics of PD and research-based data, she also shares the personal concerns and gender-specific battles that young women who live with the disease must face. She encourages all of us to be empowered through education, self-awareness, and faith. This book is about embracing your own style and grace in your journey with PD . . . as Maria says summoning your inner diva. |
| big loud therapy parkinson's: Dementia with Lewy Bodies John O'Brien, David Ames, Ian McKeith, Edmond Chiu, 2005-11-29 Filling a noticeable gap in the market for a new text solely focused on Dementia with Lewy Bodies, this book discusses cutting-edge topics covering the condition from diagnosis to management, as well as what is known about the neurobiological changes involved. With huge progress having been made over the last decade in terms of the disorder |
| big loud therapy parkinson's: Lucky Man Michael J. Fox, 2003-04-09 A funny, highly personal, gorgeously written account of what it's like to be a 30-year-old man who is told he has an 80-year-old's disease. Life is great. Sometimes, though, you just have to put up with a little more crap. -- Michael J. Fox In September 1998, Michael J. Fox stunned the world by announcing he had been diagnosed with Parkinson's disease -- a degenerative neurological condition. In fact, he had been secretly fighting it for seven years. The worldwide response was staggering. Fortunately, he had accepted the diagnosis and by the time the public started grieving for him, he had stopped grieving for himself. Now, with the same passion, humor, and energy that Fox has invested in his dozens of performances over the last 18 years, he tells the story of his life, his career, and his campaign to find a cure for Parkinson's. Combining his trademark ironic sensibility and keen sense of the absurd, he recounts his life -- from his childhood in a small town in western Canada to his meteoric rise in film and television which made him a worldwide celebrity. Most importantly however, he writes of the last 10 years, during which--with the unswerving support of his wife, family, and friends -- he has dealt with his illness. He talks about what Parkinson's has given him: the chance to appreciate a wonderful life and career, and the opportunity to help search for a cure and spread public awareness of the disease. He is a very lucky man, indeed. The Michael J. Fox Foundation Michael J. Fox is donating the profits from his book to the Michael J. Fox Foundation for Parkinson's Research, which is dedicated to fast-forwarding the cure for Parkinson's disease. The Foundation will move aggressively to identify the most promising research and raise the funds to assure that a cure is found for the millions of people living with this disorder. The Foundation's web site, MichaelJFox.org, carries the latest pertinent information about Parkinson's disease, including: A detailed description of Parkinson's disease How you can help find the cure Public Services Announcements that are aired on network and cable television stations across the country to increase awareness Upcoming related Parkinson's disease events and meetings Updates on recent research and developments |
| big loud therapy parkinson's: Handbook of Large-Scale Distributed Computing in Smart Healthcare Samee U. Khan, Albert Y. Zomaya, Assad Abbas, 2017-08-07 This volume offers readers various perspectives and visions for cutting-edge research in ubiquitous healthcare. The topics emphasize large-scale architectures and high performance solutions for smart healthcare, healthcare monitoring using large-scale computing techniques, Internet of Things (IoT) and big data analytics for healthcare, Fog Computing, mobile health, large-scale medical data mining, advanced machine learning methods for mining multidimensional sensor data, smart homes, and resource allocation methods for the BANs. The book contains high quality chapters contributed by leading international researchers working in domains, such as e-Health, pervasive and context-aware computing, cloud, grid, cluster, and big-data computing. We are optimistic that the topics included in this book will provide a multidisciplinary research platform to the researchers, practitioners, and students from biomedical engineering, health informatics, computer science, and computer engineering. |
| big loud therapy parkinson's: Self-management support to handle everyday life with Parkinson´s disease Carina Hellqvist, 2020-04-27 Background: Being diagnosed with Parkinson´s disease (PD) is a life-altering experience. The long-term condition requires continuous adjustments to the everyday life not only of the person affected, but also for care partners. There is still insufficient knowledge on how best to support this process of acceptance and adjustment to encourage self-management. Aims: The aim of this thesis is to enhance the knowledge and understanding of self-management for persons with PD (PwPD) and their care partners. Furthermore, to investigate whether the self-management intervention Swedish National Parkinson School can be used as a tool to support self-management, and how nurses specialised in the care of persons with Parkinson´s disease can tailor their support to encourage self-management in everyday life. Method and design: Both qualitative and quantitative designs and methods were used in the three studies included in this thesis. Participants included a total of 209 persons. Of these, 127 were persons with PD and 75 were care partners. Participants with PD were largely in the middle stages of the disease. The time since diagnosis ranged from less than one year to over 20 years, and most participants had lived with the disease for around five years. Participants were cared for at five separate outpatient clinics, both geriatric and neurological, in three county and two university hospitals across Sweden. Data collection included observations, interviews, self-reported questionnaires and audio-recordings of the National Parkinson School in clinical care. The overall results of this thesis were obtained using a qualitative approach, where the results of the three studies were analysed using qualitative thematic analysis as described by Braun and Clarke (2006). Results: In combining the results of the separate studies through thematic analysis three distinct but interrelated themes were evident. These described the processes and efforts of persons to accept, manage and adjust to everyday life with PD. The theme “A changed reality” involves participants´ descriptions of how life changed after the diagnosis of PD. For many this was a shock, and both the person affected and their care partners experienced a variety of emotions such as anger, denial and hopelessness. It changed their personal identities, their perception of themselves as individuals and as a couple. They worried about what the future would hold, and the uncertainty was hard to accept and handle. One strategy for processing and beginning to acknowledge the new situation involved speaking openly about the diagnosis. The second theme “Finding a new path”, involves a description of how, after accepting or at least acknowledging, their new reality, participants started to find ways of managing the impact of PD on everyday life, incorporating it into their current life and identity. Many felt new knowledge was needed and turned to books and websites on PD. An intervention which was appreciated in terms of providing tools for self-observation and self-knowledge was the Swedish National Parkinson School. Participants later used these techniques to communicate and observe symptoms and healthcare needs. Being an active participant in life and performing activities such as physical exercise or other activities they enjoyed were also used as a strategy to feel satisfaction in life. Participants frequently worked out self-care and compensatory strategies to handle everyday tasks. Another strategy they found comforting and helpful involved retaining a positive mind-set and believing that a good future lay ahead. In the third category “The companions”, the participants described self-management in everyday life as a task they performed together. Management of PD was considered the shared responsibility of the person affected and the care partner, but was also influenced by others such as family members and close friends. The Swedish National Parkinson School provided knowledge as a form of common ground for the person affected and the care partner. During the Swedish National Parkinson School, the social interaction involved in exchanging experiences and feeling support from others in the same situation was considered helpful and was much appreciated. Conclusions: Management of PD in everyday life involves both the person affected and the care partner. After the initial emotional reactions, alongside feelings of lost identity and an altered life, persons started to look to the future and were ready to find ways of handling the changed conditions of their everyday lives. Persons with PD and their care partners were now willing to learn more about PD and to find tools and strategies to help them manage its impact on their everyday lives. During this phase, they appreciated the support of the Swedish National Parkinson School intervention. In the intervention, they would meet others in the same situation to find support and exchange experiences. They also turn to healthcare for support in the process of self-management in everyday life. Nurses working specifically to support PwPD and their CP will need to tailor support taking into account the disease trajectory as well as the psychological processes involved in accepting and adjusting to PD to best fit the unique needs and wishes of every person with PD and their care partner. |
| big loud therapy parkinson's: Music and Dementia Amee Baird, Sandra Garrido, Jeanette Tamplin, 2020 Dementia is a significant health issue facing our aging population. Although there is no known cure, there is increasing evidence that music is an effective treatment for various symptoms of dementia. Music therapy and musical activities can have widespread benefits for people with dementia and their caretakers, including triggering memories, enhancing relationships, reducing agitation, and improving mood. This book outlines the current research on music and dementia from internationally renowned music therapists, music psychologists, and clinical neuropsychologists. |
| big loud therapy parkinson's: Sleep Disorders and Sleep Deprivation Institute of Medicine, Board on Health Sciences Policy, Committee on Sleep Medicine and Research, 2006-10-13 Clinical practice related to sleep problems and sleep disorders has been expanding rapidly in the last few years, but scientific research is not keeping pace. Sleep apnea, insomnia, and restless legs syndrome are three examples of very common disorders for which we have little biological information. This new book cuts across a variety of medical disciplines such as neurology, pulmonology, pediatrics, internal medicine, psychiatry, psychology, otolaryngology, and nursing, as well as other medical practices with an interest in the management of sleep pathology. This area of research is not limited to very young and old patientsâ€sleep disorders reach across all ages and ethnicities. Sleep Disorders and Sleep Deprivation presents a structured analysis that explores the following: Improving awareness among the general public and health care professionals. Increasing investment in interdisciplinary somnology and sleep medicine research training and mentoring activities. Validating and developing new and existing technologies for diagnosis and treatment. This book will be of interest to those looking to learn more about the enormous public health burden of sleep disorders and sleep deprivation and the strikingly limited capacity of the health care enterprise to identify and treat the majority of individuals suffering from sleep problems. |
| big loud therapy parkinson's: Voice Disorders and their Management Margaret Fawcus, 2013-11-11 Since this book was first published, four years ago, there has been a considerable upsurge of interest in the field of both normal and abnormal voice production. Tangible evidence of this lies in the publication of the Journal of Voice in the United States, and in the UK the formation of the British Voice Association. This organization has attracted an increasing membership from professionals involved in all aspects of voice care and use - actors and singers, laryngologists and speech therapists, teachers and phoneticians. The Association holds regular study days, holds an annual two-day symposium, and publishes a Newsletter which attracts entries from this broad spectrum of professionals. We have also seen an increase in the number of specialist voice clinics, and in the two final chapters in this book a contrast is presented between such a specialist setting and the more typical clinic that operates in the majority of general hospitals. This last chapter now contains a breakdown of voice referrals over an eight-year period, which must represent a unique published study in this country. There still remains, however, little research into the management of voice disorders. There is clearly a need for more efficacy studies into specific treatment methods, and the single case-study designs developed in the field of aphasia would seem to be appropriate here. |
| big loud therapy parkinson's: Recovery from Parkinson's Janice Hadlock, 2020-06 Parkinson's disease is a curable syndrome. The sub-dermal bioelectric pattern seen in people with idiopathic (cause unknown) Parkinson's disease is one that should only occur for a short time: when a person is in a coma or on the verge of death. In this emergency biological state, brain-dopamine amounts are normal, but release of dopamine for automatic motor function is inhibited - just like in people with Parkinson's disease. Over years, in people with PD, this pattern runs with steadily increasing strength. Four very different types of events can trigger this pattern. Four corresponding, do-it-yourself treatments can turn it off. When this pattern turns off, Parkinson's ceases.This book explains how to confirm a diagnosis of Parkinson's and how to determine which of the four triggers was used. It explains how and why the symptoms of Parkinson's match those of a person in this usually short-term neurological mode, and what to expect during recovery. |
| big loud therapy parkinson's: Neurologic and Neurodegenerative Diseases of the Larynx Philip A. Weissbrod, David O. Francis, 2020-03-03 This comprehensive text summarizes what is known about the myriad of different neurological conditions that cause dysfunction of communication, swallowing, and breathing as it relates to the upper aerodigestive tract. It serves to provide clinicians and scientists, at all levels of experience, a practical and thorough review of these diseases, their management, and frontiers in science. Chapters are written by experts in these conditions from a broad spectrum of medical specialties in order to create a book that is inclusive of diagnostic and therapeutic considerations that clinicians should think about when caring for patients with these conditions. Neurologic and Neurodegenerative Diseases of the Larynx will be an instrumental resource in guiding clinicians to better recognize the subtle and not so subtle voice, swallowing, and airway manifestations of these diseases, and improve management of patient symptoms and concerns in order to maximize both quality of life and longevity. It will aide otolaryngologists, laryngologists, neurologists, speech language pathologists, and other allied health care professionals in developing a more efficient, evidence-based, patient-focused, and multi-specialty approach to managing these complex and challenging patients. |
| big loud therapy parkinson's: Occupational Therapy Toolkit , 2018-04 Fully revised and expanded in 2018. The Occupational Therapy Toolkit 7th edition is a collection of 354 full-page illustrated patient handouts. The handouts are organized by 97 treatment guides and are based on current research and best practice. This 787 page practical resource is the BEST resource for every therapist working with physical disabilities, chronic conditions or geriatrics. |
| big loud therapy parkinson's: Parkinson's Ava S. Butler, 2018-11-02 When Ava's husband, Richard, is diagnosed with Parkinson's disease, she is shocked -- not only because of the bad news, but also because Richard was right. A bit of a hypochondriac, Richard often imagined he had contracted one deadly condition or another. Over their then nineteen years of marriage Ava had dismissed his concerns. But this time it was true. In fact, he had two horrible diseases: Parkinson's and Lewy body dementia -- a fate you wouldn't wish on your worst enemy. For the next seven years Ava wages war against these bad boys, writing her reflections and journaling her experiences as she tries everything she can find to help Richard.Parkinson's: A Love Story with Dementia for Dessert is her brutally honest, yet beautiful portrayal of losing her soulmate and best friend. Deeply sad at times, but also inspiring and even humorous, this story is sure to warm your heart. |
| big loud therapy parkinson's: Parkinson's Warrior: Fighting Back and Taking Control Nick Pernisco, 2023-07-17 Nick Pernisco was busy with a promising academic career when one day he noticed his left arm had stiffened and become immobile. After two years of tests, he was eventually diagnosed with Young-Onset Parkinson’s Disease at age 33. He fell into a deep depression and hit rock bottom, nearly losing everything. This is the story of what came next. Determined to turn his life around, Nick learned all he could about Parkinson’s, including everything about the benefits and side effects of Parkinson’s medications, the potential and limitations of natural therapies, the importance of proper nutrition, and the need for physical and emotional fitness. He began eating better, exercising regularly, and re-engaging with society. He changed his thinking about life and disease and adopted a positive attitude. He began fighting back with a warrior mentality. It worked. In PARKINSON'S WARRIOR, Nick shows that you don’t need to give up your dreams because your body is not working as it should. He tells the story of how he came to terms with Parkinson’s and shows that, through fitness, community, and positivity, the path is open for all People With Parkinson's to live better, happier, and healthier lives. |
| big loud therapy parkinson's: The New Parkinson's Disease Treatment Book J. Eric Ahlskog, PhD, MD, 2015-08-03 The fundamental guide to the most effective treatments for Parkinson's Disease, from a Mayo Clinic doctor with thirty years of clinical and research experience. In this second edition follow-up to the extremely successful first edition, Dr. Ahlskog draws on thirty years of clinical experience to present the definitive guide to dealing with all aspects of Parkinson's Disease, from treatment options and side effects to the impact of the disease on caregivers and family. Dr. Ahlskog's goal is to educate patients so that they can better team up with their doctors to do battle with the disease, streamlining the decision-making process and enhancing their treatment. To do this, Dr. Ahlskog offers a gold mine of information, distilled from his years of experience treating people with Parkinson's at the Mayo Clinic. In addition to providing a comprehensive account of Parkinson's medications, this book also examines additional aspects of treatment, such as the role of nutrition, exercise, and physical therapy. Although many commendable texts have been written on the subject of Parkinson's Disease, their discussions of treatment have not been in depth. Dr. Ahlskog sifts through aspects of the disease in order to give the reader a comprehensive sense of Parkinson's and the best available treatment options. With a broader understanding of the disease and the available options, patients are able to make more informed choices, and doctors are able to provide more tailored care. This book delivers hopeful, helpful, and extensive information to all parties concerned: patients, caregivers, and doctors. The ultimate guide to symptoms and treatment, this thoroughly updated second edition is the first place patients should turn for reliable, easy-to-grasp information on Parkinson's Disease. |
| big loud therapy parkinson's: Physical Medicine and Rehabilitation Board Review, Fourth Edition Sara J Cuccurullo, MD, 2019-10-28 Note to Readers: Publisher does not guarantee quality or access to any included digital components if book is purchased through a third-party seller. Praise for the Third Edition: “The author has done it again, producing an excellent, concise resource that provides clinicians with an optimal solution for studying for the written board examination. © Doody’s Review Service, 2015, Alan Anschel, MD (Shirley Ryan AbilityLab) This fourth edition of the incomparable review bible for the Physical Medicine and Rehabilitation Board Examination has been thoroughly updated to reflect current practice and the core knowledge tested on the exam. Recognized for its organization, consistency, and clarity through editions, the book distills the essentials and provides focused reviews of all major PM&R topics including stroke, traumatic brain injury, musculoskeletal medicine, spinal cord injuries, pain management, and more. Every chapter in the fourth edition has been rigorously evaluated and refreshed to ensure that the information is accurate and up to date. Sections on cancer treatment and rehabilitation, rheumatologic disease, and ultrasound have been significantly upgraded to incorporate new board requirements and changes in criteria for diagnosis and management. Written in outline format for easy access to information, Physical Medicine and Rehabilitation Board Review, Fourth Edition is modeled on the content blueprint for the Self-Assessment Examination for Residents (SAE-R) used by residents nationwide. Board pearls are indicated with an open-book icon to highlight key concepts and flag important clinical and board-eligible aspects of each topic. The topics are divided into major subspecialty areas written by author teams with clinical expertise in the subject and reviewed by senior specialists in each area. More than 500 signature illustrations—now with color added—clarify and reinforce concepts. In addition to its proven value as the primary resource for Board preparation and MOC, the book is also a trusted clinical reference for day-to-day practice needs. New to the Fourth Edition: Thoroughly reviewed, revised, and updated to reflect current practice and core knowledge tested on Boards Significant upgrades to ultrasound content Expanded sections on cancer treatments and rehabilitation along with rheumatologic guidelines and treatments, including new criteria for diagnosis Addition of color to highlight artwork and content areas Key Features: Board Pearls are highlighted with an open-book icon to flag key concepts and stress high-yield aspects of each topic Covers all topics on the content outlipne for the Self-Assessment Examination for Residents (SAE-R) used by residents nationwide Authored by physicians with special interest and expertise in their respective areas and reviewed by senior specialists in those areas Organizes information in outline format and by topic for easy reference Includes over 500 detailed illustrations to clarify concepts Provides updated epidemiologic and statistical data throughout |
BIG | Bjarke Ingels Group
BIG has grown organically over the last two decades from a founder, to a family, to a force of 700. Our latest transformation is the BIG LEAP: Bjarke Ingels Group of Landscape, Engineering, …
Bjarke Ingels Group - BIG
Since BIG inception in 2006, David Zahle has been responsible for delivering imaginative and pioneering designs for buildings such as Copenhill, a waste-to energy plant with a ski slope on …
Athletics Las Vegas Ballpark | BIG | Bjarke Ingels Group
The project builds on a longstanding collaboration between BIG and the Athletics dating back to a different ballpark design in Oakland, California in 2018. The new ballpark’s roof is accentuated …
Jinji Lake Pavilion | BIG | Bjarke Ingels Group
Our latest transformation is the BIG LEAP: Bjarke Ingels Group of Landscape, Engineering, Architecture, Planning and Products. A plethora of in-house perspectives allows us to see …
Gowanus 175 Third Street | BIG | Bjarke Ingels Group
Catalyzed by the major Gowanus rezoning in 2021 – one of the most significant rezonings in New York City in recent years – 175 Third Street builds on years of BIG’s prior study and design …
Sankt Lukas Hospice and Lukashuset | BIG | Bjarke Ingels Group
A small step for each of us becomes a BIG LEAP for all of us. BIG has grown organically over the last two decades from a founder, to a family, to a force of 700. Our latest transformation is the …
Google Bay View | BIG | Bjarke Ingels Group
Leon Rost — Partner, BIG The campus includes 17.3 acres of high-value natural areas – including wet meadows, woodlands, and marsh – that contribute to Google’s broader efforts to …
Gelephu International Airport | BIG | Bjarke Ingels Group
As Bhutan’s second international airport, the project is a collaboration with aviation engineering firm NACO and an integral part of the Gelephu Mindfulness City (GMC) masterplan designed …
Opera and Ballet Theatre of Kosovo | BIG | Bjarke Ingels Group
BIG proposes a simple and prag matic arrangement of the performance venues draped in a soft, undulating exterior skin of photovoltaic tiles. The theatre ’s form is reminiscent of the free …
Freedom Plaza | BIG | Bjarke Ingels Group
Freedom Plaza will extend BIG’s contribution to New York City’s waterfront, alongside adjacent coastal projects that include the East Side Coastal Resiliency project, the Battery Park City …
BIG | Bjarke Ingels Group
BIG has grown organically over the last two decades from a founder, to a family, to a force of 700. Our latest transformation is the BIG LEAP: Bjarke Ingels Group of Landscape, Engineering, …
Bjarke Ingels Group - BIG
Since BIG inception in 2006, David Zahle has been responsible for delivering imaginative and pioneering designs for buildings such as Copenhill, a waste-to energy plant with a ski slope on …
Athletics Las Vegas Ballpark | BIG | Bjarke Ingels Group
The project builds on a longstanding collaboration between BIG and the Athletics dating back to a different ballpark design in Oakland, California in 2018. The new ballpark’s roof is accentuated …
Jinji Lake Pavilion | BIG | Bjarke Ingels Group
Our latest transformation is the BIG LEAP: Bjarke Ingels Group of Landscape, Engineering, Architecture, Planning and Products. A plethora of in-house perspectives allows us to see …
Gowanus 175 Third Street | BIG | Bjarke Ingels Group
Catalyzed by the major Gowanus rezoning in 2021 – one of the most significant rezonings in New York City in recent years – 175 Third Street builds on years of BIG’s prior study and design …
Sankt Lukas Hospice and Lukashuset | BIG | Bjarke Ingels Group
A small step for each of us becomes a BIG LEAP for all of us. BIG has grown organically over the last two decades from a founder, to a family, to a force of 700. Our latest transformation is the …
Google Bay View | BIG | Bjarke Ingels Group
Leon Rost — Partner, BIG The campus includes 17.3 acres of high-value natural areas – including wet meadows, woodlands, and marsh – that contribute to Google’s broader efforts to …
Gelephu International Airport | BIG | Bjarke Ingels Group
As Bhutan’s second international airport, the project is a collaboration with aviation engineering firm NACO and an integral part of the Gelephu Mindfulness City (GMC) masterplan designed …
Opera and Ballet Theatre of Kosovo | BIG | Bjarke Ingels Group
BIG proposes a simple and prag matic arrangement of the performance venues draped in a soft, undulating exterior skin of photovoltaic tiles. The theatre ’s form is reminiscent of the free …
Freedom Plaza | BIG | Bjarke Ingels Group
Freedom Plaza will extend BIG’s contribution to New York City’s waterfront, alongside adjacent coastal projects that include the East Side Coastal Resiliency project, the Battery Park City …
