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| examples of ethical violations in human research studies: The Belmont Report United States. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, 1978 |
| examples of ethical violations in human research studies: Women and Health Research Institute of Medicine, Committee on Ethical and Legal Issues Relating to the Inclusion of Women in Clinical Studies, 1994-02-01 In the nineteenth century some scientists argued that women should not be educated because thinking would use energy needed by the uterus for reproduction. The proof? Educated women had a lower birth rate. Today's researchers can only shake their heads at such reasoning. Yet professional journals and the popular press are increasingly criticizing medical research for ignoring women's health issues. Women and Health Research examines the facts behind the public's perceptions about women participating as subjects in medical research. With the goal of increasing researchers' awareness of this important topic, the book explores issues related to maintaining justice (in its ethical sense) in clinical studies. Leading experts present general principles for the ethical conduct of research on womenâ€principles that are especially important in the light of recent changes in federal policy on the inclusion of women in clinical research. Women and Health Research documents the historical shift from a paternalistic approach by researchers toward women and a disproportionate reliance on certain groups for research to one that emphasizes proper access for women as subjects in clinical studies in order to ensure that women receive the benefits of research. The book addresses present-day challenges to equity in four areas: Scientificâ€Do practical aspects of scientific research work at cross-purposes to gender equity? Focusing on drug trials, the authors identify rationales for excluding people from research based on demographics. Social and Ethicalâ€The authors offer compelling discussions on subjectivity in science, the evidence for male bias, and issues related to race and ethnicity, as well as the recruitment, retention, and protection of research participants. Legalâ€Women and Health Research reviews federal research policies that affect the inclusion of women and evaluates the basis for researchers' fears about liability, citing court cases. Riskâ€The authors focus on risks to reproduction and offspring in clinical drug trials, exploring how risks can be identified for study participants, who should make the assessment of risk and benefit for participation in a clinical study, and how legal implications could be addressed. This landmark study will be of immediate use to the research community, policymakers, women's health advocates, attorneys, and individuals. |
| examples of ethical violations in human research studies: Responsible Conduct of Research Adil E. Shamoo, David B. Resnik, 2009-02-12 Recent scandals and controversies, such as data fabrication in federally funded science, data manipulation and distortion in private industry, and human embryonic stem cell research, illustrate the importance of ethics in science. Responsible Conduct of Research, now in a completely updated second edition, provides an introduction to the social, ethical, and legal issues facing scientists today. |
| examples of ethical violations in human research studies: Field Trials of Health Interventions Peter G. Smith, Richard H. Morrow, David A. Ross, 2015 This is an open access title available under the terms of a CC BY-NC 4.0 International licence. It is free to read at Oxford Scholarship Online and offered as a free PDF download from OUP and selected open access locations. Before new interventions are released into disease control programmes, it is essential that they are carefully evaluated in field trials'. These may be complex and expensive undertakings, requiring the follow-up of hundreds, or thousands, of individuals, often for long periods. Descriptions of the detailed procedures and methods used in the trials that have been conducted have rarely been published. A consequence of this, individuals planning such trials have few guidelines available and little access to knowledge accumulated previously, other than their own. In this manual, practical issues in trial design and conduct are discussed fully and in sufficient detail, that Field Trials of Health Interventions may be used as a toolbox' by field investigators. It has been compiled by an international group of over 30 authors with direct experience in the design, conduct, and analysis of field trials in low and middle income countries and is based on their accumulated knowledge and experience. Available as an open access book via Oxford Medicine Online, this new edition is a comprehensive revision, incorporating the new developments that have taken place in recent years with respect to trials, including seven new chapters on subjects ranging from trial governance, and preliminary studies to pilot testing. |
| examples of ethical violations in human research studies: Ethical Conduct of Clinical Research Involving Children Institute of Medicine, Board on Health Sciences Policy, Committee on Clinical Research Involving Children, 2004-07-09 In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular. |
| examples of ethical violations in human research studies: Tearoom Trade Laud Humphreys, 2017-07-12 From the time of its first publication, 'Tearoom Trade' engendered controversy. It was also accorded an unusual amount of praise for a first book on a marginal, intentionally self-effacing population by a previously unknown sociologist. The book was quickly recognized as an important, imaginative, and useful contribution to our understanding of deviant sexual activity. Describing impersonal, anonymous sexual encounters in public restrooms—tearooms in the argot—the book explored the behavior of men whose closet homosexuality was kept from their families and neighbors. By posing as an initiate, the author was able to engage in systematic observation of homosexual acts in public settings, and later to develop a more complete picture of those involved by interviewing them in their homes, again without revealing their unwitting participation in his study. This enlarged edition of 'Tearoom Trade' includes the original text, together with a retrospect, written by Nicholas von Hoffman, Irving Louis Horowitz, Lee Rainwater, Donald P. Warwick, and Myron Glazer. The material added includes a perspective on the social scientist at work and the ethical problems to which that work may give rise, along with debate by the book's initial critics and proponents. Humphreys added a postscript and his views on the opinion expressed in the retrospect. |
| examples of ethical violations in human research studies: Ethical Considerations for Research on Housing-Related Health Hazards Involving Children Institute of Medicine, National Research Council, Division of Behavioral and Social Sciences and Education, Board on Children, Youth, and Families, Committee on Ethical Issues in Housing-Related Health Hazard Research Involving Children, Youth, and Families, 2005-11-10 Ethical Considerations for Research on Housing-Related Health Hazards Involving Children explores the ethical issues posed when conducting research designed to identify, understand, or ameliorate housing-related health hazards among children. Such research involves children as subjects and is conducted in the home and in communities. It is often conducted with children in low-income families given the disproportionate prevalence of housing-related conditions such as lead poisoning, asthma, and fatal injuries among these children. This book emphasizes five key elements to address the particular ethical concerns raised by these characteristics: involving the affected community in the research and responding to their concerns; ensuring that parents understand the essential elements of the research; adopting uniform federal guidelines for such research by all sponsors (Subpart D of 45 CFR 46); providing guidance on key terms in the regulations; and viewing research oversight as a system with important roles for researchers, IRBs and their research institutions, sponsors and regulators of research, and the community. |
| examples of ethical violations in human research studies: The Immortal Life of Henrietta Lacks Rebecca Skloot, 2010-02-02 #1 NEW YORK TIMES BESTSELLER • “The story of modern medicine and bioethics—and, indeed, race relations—is refracted beautifully, and movingly.”—Entertainment Weekly NOW A MAJOR MOTION PICTURE FROM HBO® STARRING OPRAH WINFREY AND ROSE BYRNE • ONE OF THE “MOST INFLUENTIAL” (CNN), “DEFINING” (LITHUB), AND “BEST” (THE PHILADELPHIA INQUIRER) BOOKS OF THE DECADE • ONE OF ESSENCE’S 50 MOST IMPACTFUL BLACK BOOKS OF THE PAST 50 YEARS • WINNER OF THE CHICAGO TRIBUNE HEARTLAND PRIZE FOR NONFICTION NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The New York Times Book Review • Entertainment Weekly • O: The Oprah Magazine • NPR • Financial Times • New York • Independent (U.K.) • Times (U.K.) • Publishers Weekly • Library Journal • Kirkus Reviews • Booklist • Globe and Mail Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her slave ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine: The first “immortal” human cells grown in culture, which are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions. Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave. Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family—past and present—is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of. Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah. Deborah was consumed with questions: Had scientists cloned her mother? Had they killed her to harvest her cells? And if her mother was so important to medicine, why couldn’t her children afford health insurance? Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences. |
| examples of ethical violations in human research studies: Ethical Issues in Covert, Security and Surveillance Research Ron Iphofen, Dónal O’Mathúna, 2021-12-09 The ebook edition of this title is Open Access and freely available to read online. Ethical Issues in Covert, Security and Surveillance Research showcases that it is only when the integrity of research is carefully pursued can users of the evidence produced be assured of its value and its ethical credentials. |
| examples of ethical violations in human research studies: Ethics in Scientific Research Cortney Weinbaum, Carlos Ignacio Gutierrez, 2019-06-05 Scientific research ethics vary by discipline and by country, and this analysis sought to understand those variations. The authors reviewed literature and conducted interviews to provide researchers, government officials, and others who create, modify, and enforce ethics in scientific research around the world with an understanding of how ethics are created, monitored, and enforced across scientific disciplines and across international borders. |
| examples of ethical violations in human research studies: Ethics Dumping Doris Schroeder, Julie Cook, François Hirsch, Solveig Fenet, Vasantha Muthuswamy, 2017-12-04 This open access book provides original, up-to-date case studies of “ethics dumping” that were largely facilitated by loopholes in the ethics governance of low and middle-income countries. It is instructive even to experienced researchers since it provides a voice to vulnerable populations from the fore mentioned countries. Ensuring the ethical conduct of North-South collaborations in research is a process fraught with difficulties. The background conditions under which such collaborations take place include extreme differentials in available income and power, as well as a past history of colonialism, while differences in culture can add a new layer of complications. In this context, up-to-date case studies of unethical conduct are essential for research ethics training. |
| examples of ethical violations in human research studies: Ethics in Qualitative Research Tina Miller, Maxine Birch, Melanie Mauthner, Julie Jessop, 2012-09-13 This fresh, confident second edition expands its focus on the theoretical and practical aspects of doing qualitative research in light of new ethical dilemmas facing researchers today. In a climate of significant social and technological change, researchers must respond to increased ethical regulation and scrutiny of research. New sources, types of data and modes of accessing participants are all challenging and reconfiguring traditional ideas of the research relationship. This engaging textbook explores key ethical dilemmas - including research boundaries, informed consent, participation, rapport and analysis - within the context of a rapidly changing research environment. The book effectively covers the ethical issues related to the data collection process, helping readers to address the ethical considerations relevant to their research. This fully updated new edition: - Maps the changing and increasingly technology-reliant aspects of research relationships and practices - Provides researchers with guidance through practical examples, enabling those engaged in qualitative research to question and navigate in ethical ways This book is essential reading for all those engaged in qualitative research across the social sciences. |
| examples of ethical violations in human research studies: 100 Questions (and Answers) About Research Ethics Emily E. Anderson, Amy Corneli, 2017-12-05 100 Questions (and Answers) About Research Ethics by Emily E Anderson and Amy Corneli is an essential guide for graduate students and researchers in the social and behavioral sciences. It identifies ethical issues that individuals must consider when planning research studies as well as provides guidance on how to address ethical issues that might arise during research implementation. Questions such as assessing risks, to protecting privacy and vulnerable populations, obtaining informed consent, using technology including social media, negotiating the IRB process, and handling data ethically are covered. Acting as a resource for students developing their thesis and dissertation proposals and for junior faculty designing research, this book reflects the latest U.S. federal research regulations to take effect mostly in January 2018. |
| examples of ethical violations in human research studies: Systematic Reviews in Educational Research Olaf Zawacki-Richter, Michael Kerres, Svenja Bedenlier, Melissa Bond, Katja Buntins, 2019-11-21 In this open access edited volume, international researchers of the field describe and discuss the systematic review method in its application to research in education. Alongside fundamental methodical considerations, reflections and practice examples are included and provide an introduction and overview on systematic reviews in education research. |
| examples of ethical violations in human research studies: Elder Mistreatment National Research Council, Division of Behavioral and Social Sciences and Education, Committee on Law and Justice, Committee on National Statistics, Panel to Review Risk and Prevalence of Elder Abuse and Neglect, 2003-02-06 Since the late 1970s when Congressman Claude Pepper held widely publicized hearings on the mistreatment of the elderly, policy makers and practitioners have sought ways to protect older Americans from physical, psychological, and financial abuse. Yet, during the last 20 years fewer than 50 articles have addressed the shameful problem that abusersâ€and sometimes the abused themselvesâ€want to conceal. Elder Mistreatment in an Aging America takes a giant step toward broadening our understanding of the mistreatment of the elderly and recommends specific research and funding strategies that can be used to deepen it. The book includes a discussion of the conceptual, methodological, and logistical issues needed to create a solid research base as well as the ethical concerns that must be considered when working with older subjects. It also looks at problems in determination of a report's reliability and the role of physicians, EMTs, and others who are among the first to recognize situations of mistreatment. Elder Mistreatment in an Aging America will be of interest to anyone concerned about the elderly and ways to intervene when abuse is suspected, including family members, caregivers, and advocates for the elderly. It will also be of interest to researchers, research sponsors, and policy makers who need to know how to advance our knowledge of this problem. |
| examples of ethical violations in human research studies: Code of Human Research Ethics , 2014 |
| examples of ethical violations in human research studies: Ethics in Research with Human Participants Bruce Dennis Sales, Susan Folkman, 2000-01-01 The American Psychological Association offers this book to help researchers understand ethical conflicts. The examples and analyses help researchers in identifying conflicts of interest and solving ethical dilemmas, planning research, recruiting participants, training researchers, managing matters of informed consent and confidentiality, dealing with intellectual property issues, working with special populations, and updating protocols for institutional review boards. |
| examples of ethical violations in human research studies: International Ethical Guidelines for Biomedical Research Involving Human Subjects Council for International Organizations of Medical Sciences, 2002 The present text is the revised/updated version of the CIOMS International Ethical Guidelines for Biomedical Research Involving Human Subjects. It consists of 21 guidelines with commentaries. A prefatory section outlines the historical background and the revision process and includes an introduction an account of earlier instruments and guidelines a statement of ethical principles and a preamble. An Appendix lists the items to be included in the research protocol to be submitted for scientific and ethical review and clearance. The Guidelines relate mainly to ethical justification and scientific validity of research; ethical review; informed consent; vulnerability - of individuals groups communities and populations; women as research subjects; equity regarding burdens and benefits; choice of control in clinical trials; confidentiality; compensation for injury; strengthening of national or local capacity for ethical review; and obligations of sponsors to provide health-care services. They are designed to be of use to countries in defining national policies on the ethics of biomedical research involving human subjects applying ethical standards in local circumstances and establishing or improving ethical review mechanisms. A particular aim is to reflect the conditions and the needs of low-resource countries and the implications for multinational or transnational research in which they may be partners. |
| examples of ethical violations in human research studies: Ethics in Social Research Kevin Love, 2012-08-17 Ethics in Social Research |
| examples of ethical violations in human research studies: Ethics in Psychology Gerald P. Koocher, Patricia Keith-Spiegel, 1998 Written in a highly readable and accessible style, this new edition retains the key features that have contributed to its popularity, including hundreds of case studies that provide illustrative guidance on a wide variety of topics, including fee setting, advertising for clients, research ethics, sexual attraction, how to confront observed unethical conduct in others, and confidentiality. Ethics in Psychology and the Mental Health Professions will be important reading for practitioners and students in training.--BOOK JACKET. |
| examples of ethical violations in human research studies: Research Methods in Education Joseph Check, Russell K. Schutt, 2011-10-27 Research Methods in Education introduces research methods as an integrated set of techniques for investigating questions about the educational world. This lively, innovative text helps students connect technique and substance, appreciate the value of both qualitative and quantitative methodologies, and make ethical research decisions. It weaves actual research stories into the presentation of research topics, and it emphasizes validity, authenticity, and practical significance as overarching research goals. The text is divided into three sections: Foundations of Research (5 chapters), Research Design and Data Collection (7 chapters), and Analyzing and Reporting Data (3 chapters). This tripartite conceptual framework honors traditional quantitative approaches while reflecting the growing popularity of qualitative studies, mixed method designs, and school-based techniques. This approach provides a comprehensive, conceptually unified, and well-written introduction to the exciting but complex field of educational research. |
| examples of ethical violations in human research studies: The Oxford Textbook of Clinical Research Ethics Ezekiel J. Emanuel, Christine C. Grady, Robert A. Crouch, Reidar K. Lie, Franklin G. Miller, David D. Wendler, 2011-02 The Oxford Textbook of Clinical Research Ethics is the first comprehensive and systematic reference on clinical research ethics. Under the editorship of experts from the U.S. National Institutes of Health of the United States, the book's 73 chapters offer a wide-ranging and systematic examination of all aspects of research with human beings. Considering the historical triumphs of research as well as its tragedies, the textbook provides a framework for analyzing the ethical aspects of research studies with human beings. Through both conceptual analysis and systematic reviews of empirical data, the contributors examine issues ranging from scientific validity, fair subject selection, risk benefit ratio, independent review, and informed consent to focused consideration of international research ethics, conflicts of interests, and other aspects of responsible conduct of research. The editors of The Oxford Textbook of Clinical Research Ethics offer a work that critically assesses and advances scholarship in the field of human subjects research. Comprehensive in scope and depth, this book will be a crucial resource for researchers in the medical sciences, as well as teachers and students. |
| examples of ethical violations in human research studies: Casebook on Ethical Issues in International Health Research World Health Organization, 2009 I. Defining research--II. Issues in study design . -- III. Harm and benefit -- IV. Voluntary informed consent -- V. Standard of care -- VI. Obligations to participants and communities -- VII. Privacy and confidentiality -- VIII. Professional ethics. |
| examples of ethical violations in human research studies: Ethical and Regulatory Aspects of Clinical Research Ezekiel J. Emanuel, 2003 Professionals in need of such training and bioethicists will be interested. |
| examples of ethical violations in human research studies: Introduction to Sociology 2e Nathan J. Keirns, Heather Griffiths, Eric Strayer, Susan Cody-Rydzewski, Gail Scaramuzzo, Sally Vyain, Tommy Sadler, Jeff D. Bry, Faye Jones, 2015-03-17 This text is intended for a one-semester introductory course.--Page 1. |
| examples of ethical violations in human research studies: Clinical Ethics Albert R. Jonsen, Mark Siegler, William J. Winslade, 1992 Clinical Ethics introduces the four-topics method of approaching ethical problems (i.e., medical indications, patient preferences, quality of life, and contextual features). Each of the four chapters represents one of the topics. In each chapter, the authors discuss cases and provide comments and recommendations. The four-topics method is an organizational process by which clinicians can begin to understand the complexities involved in ethical cases and can proceed to find a solution for each case. |
| examples of ethical violations in human research studies: International Ethical Guidelines for Health-Related Research Involving Humans Council for International Organizations of Medical Sciences (CIOMS), 2017-01-31 In the new 2016 version of the ethical guidelines, CIOMS provides answers to a number of pressing issues in research ethics. The Council does so by stressing the need for research having scientific and social value, by providing special guidelines for health-related research in low-resource settings, by detailing the provisions for involving vulnerable groups in research and for describing under what conditions biological samples and health-related data can be used for research.--Page 4 de la couverture. |
| examples of ethical violations in human research studies: Code of Ethics for Nurses with Interpretive Statements American Nurses Association, 2001 Pamphlet is a succinct statement of the ethical obligations and duties of individuals who enter the nursing profession, the profession's nonnegotiable ethical standard, and an expression of nursing's own understanding of its commitment to society. Provides a framework for nurses to use in ethical analysis and decision-making. |
| examples of ethical violations in human research studies: Handbook of Ethics in Quantitative Methodology A. T. Panter, Sonya K. Sterba, 2011-03-01 This comprehensive Handbook is the first to provide a practical, interdisciplinary review of ethical issues as they relate to quantitative methodology including how to present evidence for reliability and validity, what comprises an adequate tested population, and what constitutes scientific knowledge for eliminating biases. The book uses an ethical framework that emphasizes the human cost of quantitative decision making to help researchers understand the specific implications of their choices. The order of the Handbook chapters parallels the chronology of the research process: determining the research design and data collection; data analysis; and communicating findings. Each chapter: Explores the ethics of a particular topic Identifies prevailing methodological issues Reviews strategies and approaches for handling such issues and their ethical implications Provides one or more case examples Outlines plausible approaches to the issue including best-practice solutions. Part 1 presents ethical frameworks that cross-cut design, analysis, and modeling in the behavioral sciences. Part 2 focuses on ideas for disseminating ethical training in statistics courses. Part 3 considers the ethical aspects of selecting measurement instruments and sample size planning and explores issues related to high stakes testing, the defensibility of experimental vs. quasi-experimental research designs, and ethics in program evaluation. Decision points that shape a researchers’ approach to data analysis are examined in Part 4 – when and why analysts need to account for how the sample was selected, how to evaluate tradeoffs of hypothesis-testing vs. estimation, and how to handle missing data. Ethical issues that arise when using techniques such as factor analysis or multilevel modeling and when making causal inferences are also explored. The book concludes with ethical aspects of reporting meta-analyses, of cross-disciplinary statistical reform, and of the publication process. This Handbook appeals to researchers and practitioners in psychology, human development, family studies, health, education, sociology, social work, political science, and business/marketing. This book is also a valuable supplement for quantitative methods courses required of all graduate students in these fields. |
| examples of ethical violations in human research studies: The Ethics Police? Robert Klitzman, 2015 Studies on humans have saved countless lives, but sometimes harm participants. Research ethics committees currently monitor scientists, but have been increasingly criticized for blocking important research. How these committees work, however, is largely unknown. This book uniquely illuminates this hidden world that ultimately affects us all. |
| examples of ethical violations in human research studies: Oxford Textbook of Creative Arts, Health, and Wellbeing Stephen Clift, Paul Marc Camic, 2016 There is growing interest internationally in the contributions which the creative arts can make to wellbeing and health in both healthcare and community settings. A timely addition to the field, this book discusses the role the creative arts have in addressing some of the most pressing public health challenges faced today. Providing an evidence-base and recommendations for a wide audience, this is an essential resource for anyone involved with this increasingly important component of public health practice. |
| examples of ethical violations in human research studies: Social Science Research Anol Bhattacherjee, 2012-04-01 This book is designed to introduce doctoral and graduate students to the process of conducting scientific research in the social sciences, business, education, public health, and related disciplines. It is a one-stop, comprehensive, and compact source for foundational concepts in behavioral research, and can serve as a stand-alone text or as a supplement to research readings in any doctoral seminar or research methods class. This book is currently used as a research text at universities on six continents and will shortly be available in nine different languages. |
| examples of ethical violations in human research studies: The Science of Citizen Science Katrin Vohland, Anne Land-zandstra, Luigi Ceccaroni, Rob Lemmens, Josep Perelló, Marisa Ponti, Roeland Samson, Katherin Wagenknecht, 2021 This open access book discusses how the involvement of citizens into scientific endeavors is expected to contribute to solve the big challenges of our time, such as climate change and the loss of biodiversity, growing inequalities within and between societies, and the sustainability turn. The field of citizen science has been growing in recent decades. Many different stakeholders from scientists to citizens and from policy makers to environmental organisations have been involved in its practice. In addition, many scientists also study citizen science as a research approach and as a way for science and society to interact and collaborate. This book provides a representation of the practices as well as scientific and societal outcomes in different disciplines. It reflects the contribution of citizen science to societal development, education, or innovation and provides and overview of the field of actors as well as on tools and guidelines. It serves as an introduction for anyone who wants to get involved in and learn more about the science of citizen science. |
| examples of ethical violations in human research studies: Clinical Trials in Vulnerable Populations Milica Prostran, 2018-05-09 This book Clinical Trials in Vulnerable Populations has 12 chapters divided into 4 sections: Minority Patients, Women, Medically Compromised Patients and Clinical Trials. Contributing authors came from several countries, from Serbia to Turkey. The book was edited by Professor Milica Prostran MD, Ph.D., specialist in Clinical Pharmacology. The potential reader is shown a modern approach to clinical trials in vulnerable populations, from different points of view. The chapters deal at length and clarity with their topics. Finally, I believe, that this book I edited and reviewed with dedication will capture the attention of many readers, from medical students to practicing doctors and pharmacists. All of whom must consider this very important field of medicine: clinical trials in vulnerable patients. |
| examples of ethical violations in human research studies: Examining Core Elements of International Research Collaboration Institute of Medicine, National Academy of Engineering, National Academy of Sciences, Policy and Global Affairs, Government-University-Industry Research Roundtable, Planning Committee for the Workshop on Examining Core Elements of International Collaboration, 2011-09-29 The globalization of science, engineering, and medical research is proceeding rapidly. The globalization of research has important implications for the U.S. research enterprise, for the U.S. government agencies, academic institutions, and companies that support and perform research, and for the world at large. As science and technology capabilities grow around the world, U.S.-based organizations are finding that international collaborations and partnerships provide unique opportunities to enhance research and training. At the same time, significant obstacles exist to smooth collaboration across national borders. Enhancing international collaboration requires recognition of differences in culture, legitimate national security needs, and critical needs in education and training. In response to these trends, the Government-University-Industry Research Roundtable (GUIRR) launched a Working Group on International Research Collaborations (I-Group) in 2008, following its meeting on New Partnerships on a Global Platform that June. As part of I-Group's continuing effort, a workshop on Examining Core Elements of International Research Collaboration was held July 26-27, 2010 in Washington, DC. One primary goal of the workshop is to better understand the risks involved in international research collaboration for organizations and individual participants, and the mechanisms that can be used to manage those risks. Issues to be addressed in the workshop include the following: (1) Cultural Differences and Nuances; (2) Legal Issues and Agreements; (3) Differences in Ethical Standards; (4) Research Integrity and the Responsible Conduct of Research; (5) Intellectual Property; (6) Risk Management; (7) Export Controls; and (8) Strategies for Developing Meaningful International Collaborations. The goal for the workshop and the summary, Examining Core Elements of International Research Collaboration, is to serve as an information resource for participants and others interested in international research collaborations. It will also aid I-Group in setting its future goals and priorities. |
| examples of ethical violations in human research studies: Fostering Integrity in Research National Academies of Sciences, Engineering, and Medicine, Policy and Global Affairs, Committee on Science, Engineering, Medicine, and Public Policy, Committee on Responsible Science, 2018-01-13 The integrity of knowledge that emerges from research is based on individual and collective adherence to core values of objectivity, honesty, openness, fairness, accountability, and stewardship. Integrity in science means that the organizations in which research is conducted encourage those involved to exemplify these values in every step of the research process. Understanding the dynamics that support †or distort †practices that uphold the integrity of research by all participants ensures that the research enterprise advances knowledge. The 1992 report Responsible Science: Ensuring the Integrity of the Research Process evaluated issues related to scientific responsibility and the conduct of research. It provided a valuable service in describing and analyzing a very complicated set of issues, and has served as a crucial basis for thinking about research integrity for more than two decades. However, as experience has accumulated with various forms of research misconduct, detrimental research practices, and other forms of misconduct, as subsequent empirical research has revealed more about the nature of scientific misconduct, and because technological and social changes have altered the environment in which science is conducted, it is clear that the framework established more than two decades ago needs to be updated. Responsible Science served as a valuable benchmark to set the context for this most recent analysis and to help guide the committee's thought process. Fostering Integrity in Research identifies best practices in research and recommends practical options for discouraging and addressing research misconduct and detrimental research practices. |
| examples of ethical violations in human research studies: The SAGE Handbook of Qualitative Research Ethics Ron Iphofen, Martin Tolich, 2018-02-05 This handbook is a much-needed and in-depth review of the distinctive set of ethical considerations which accompanies qualitative research. This is particularly crucial given the emergent, dynamic and interactional nature of most qualitative research, which too often allows little time for reflection on the important ethical responsibilities and obligations Contributions from leading international researchers have been carefully organised into six key thematic sections: Part One: Thick Descriptions Of Qualitative Research Ethics Part Two: Qualitative Research Ethics By Technique Part Three: Ethics As Politics Part Four: Qualitative Research Ethics With Vulnerable Groups Part Five: Relational Research Ethics Part Six: Researching Digitally This Handbook is a one-stop resource on qualitative research ethics across the social sciences that draws on the lessons learned and the successful methods for surmounting problems – the tried and true, and the new. |
| examples of ethical violations in human research studies: Designing and Conducting Research in Education Clifford J. Drew, Michael L. Hardman, John L. Hosp, 2008 The authors did an excellent job of engaging students by being empathetic to their anxieties while taking a research design course. The authors also present a convincing case of the relevancies of research in daily life by showing how information was used or misused to affect our personal and professional decisions. —Cherng-Jyh Yen, George Washington University A practice-oriented, non-mathematical approach to understanding, planning, conducting, and interpreting research in education Practical and applied, Designing and Conducting Research in Education is the perfect first step for students who will be consuming research as well as for those who will be actively involved in conducting research. Readers will find up-to-date examinations of quantitative, qualitative, and mixed-methods research approaches which have emerged as important components in the toolbox of educational research. Real-world situations are presented in each chapter taking the reader through various challenges often encountered in the world of educational research. Key Features: Examines quantitative, qualitative, and mixed-methods research approaches, which have emerged as important components in the toolbox of educational research Explains each step of the research process very practically to help students plan and conduct a research project in education Applies research in real-world situations by taking the reader through various challenges often encountered in field settings Includes a chapter on ethical issues in conducting research Provides a Student study site that offers the opportunity to interact with contemporary research articles in education Instructor Resources on CD provide a Computerized test bank, Sample Syllabi, General Teaching Tips and more Intended audience: This book provides an introduction to research that emphasizes the fundamental concepts of planning and design. The book is designed to be a core text for the very first course on research methods. In some fields the first course is offered at an undergraduate level whereas in others it is a beginning graduate class. The book is perfect for introductory students. The language is top notch, the examples are helpful, and the graphic features (tables, figures) are uncomplicated and contain important information in an easy-to-understand format. Excellent text! —John Huss, Northern Kentucky University Designing and Conducting Research in Education is written in a style that is conducive to learning for the type of graduate students we teach here in the College of Education. I appreciate the 'friendly' tone and concise writing that the authors utilize. —Steven Harris, Tarleton State University A hands on, truly accessible text on how to design and conduct research —Joan P. Sebastian, National University |
| examples of ethical violations in human research studies: Handbook of Research Ethics and Scientific Integrity Ron Iphofen, 2020-04-02 This handbook is a ‘one-stop shop’ for current information, issues and challenges in the fields of research ethics and scientific integrity. It provides a comprehensive coverage of research and integrity issues, both within researchers’ ‘home’ discipline and in relation to similar concerns in other disciplines. The handbook covers common elements shared by disciplines and research professions, such as consent, privacy, data management, fraud, and plagiarism. The handbook also includes contributions and perspectives from academics from various disciplines, treating issues specific to their fields. Readers are able to quickly source the most comprehensive and up-to-date information, protagonists, issues and challenges in the field. Experienced researchers keen to assess their own perspectives, as well as novice researchers aiming to establish the field, will equally find the handbook of interest and practical benefit. It saves them a great deal of time in sourcing the disparate available material in these fields and it is the first ‘port of call’ for a wide range of researchers, research advisors, funding agencies and research reviewers.The most important feature is the handbook’s ability to provide practical advice and guidance to researchers in a wide range of disciplines and professions to help them ‘think through’ their approach to difficult questions related to the principles, values and standards they need to bring to their research practice. |
| examples of ethical violations in human research studies: The Unfortunate Experiment Sandra Coney, 1988 In 1984 the medical journal Obstetrics and Gynecology published a paper that would initiate an investigation into one of the greatest medical scandals of the late twentieth century. Titled The Invasive Potential of Carcinoma in Situ of the Cervix, it discussed the results of an experiment that had been run at the National Women’s Hospital in Auckland, New Zealand, since 1955. The experiment looked at the natural history of cervical carcinoma in situ (CIS) – in other words, what happens if no treatment is initiated in a condition suspected (when the experiment began) to lead to cervical cancer. The paper divided participants into two groups, one that had negative results after biopsy or treatment, and one smaller group that continued to test positive. This second group had a significant rate of cervical cancer; some of these women were followed for twenty-five years without treatment, and in only 5% did the disease spontaneously resolve. For the other 95%, outcomes ranged from positive but localised results to metastatic disease and death. The authors said these results were in contrast with other, earlier papers about the experiment. After much research, Sandra Coney, one-time editor of a NZ feminist magazine, and Phyllida Bunkle, a women’s studies lecturer, wrote an article about the experiment, exposing the unauthorised research performed by one prominent gynaecologist in support of his belief that CIS was not associated with cervical cancer. Professor Herbert Green, a physician of considerable influence and power throughout New Zealand, persisted in his belief despite increasingly convincing proof of a progressive connection between the two conditions, never sought permission from his patients, or even told them what he was doing. |
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Apache ECharts，一款基于JavaScript的数据可视化图表库，提供直观，生动，可交互，可个性化定制的数据可视化图表。
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Examples; Resources. Spread Sheet Tool; Theme Builder; Cheat Sheet; More Resources; Community. Events; Committers; Mailing List; How to Contribute; Dependencies; Code …
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Examples; Resources. Spread Sheet Tool; Theme Builder; Cheat Sheet; More Resources; Community. Events; Committers; Mailing List; How to Contribute; Dependencies; Code …
Apache ECharts
ECharts: A Declarative Framework for Rapid Construction of Web-based Visualization. 如果您在科研项目、产品、学术论文、技术报告、新闻报告、教育、专利以及其他相关活动中使用了 Apache …
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