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| duchenne muscular dystrophy occupational therapy: Occupational Therapy and Duchenne Muscular Dystrophy Kate Stone, Claire Tester, Joy Blakeney, Alex Howarth, Hether McAndrew, Nicola Traynor, Mary McCutcheon, Ruth Johnston, 2007-09-27 This is a practical guide for Occupational Therapists and others who provide services to people who have Duchenne muscular dystrophy. The goal of the book is to deepen the readers understanding of the support that occupational therapists can offer to families who are affected by this condition. Written by experienced occupational therapists with a special interest in Duchenne muscular dystrophy. The book will provide information and support to therapists who may be working in isolation, or who rarely work with this client group. It is for the experienced therapist as well as the student. Each chapter of this book gives a clear and comprehensive description of different aspects of occupational therapy assessments and interventions. |
| duchenne muscular dystrophy occupational therapy: Occupational therapy and Duchenne Muscular Dystrophy Kate Stone, 2010 |
| duchenne muscular dystrophy occupational therapy: Duchenne Muscular Dystrophy Alan E. H. Emery, Francesco Muntoni, Rosaline C. M. Quinlivan, 2015-02-19 Duchenne Muscular Dystrophy, an inherited and progressive muscle wasting disease, is one of the most common single gene disorders found in the developed world. In this fourth edition of the classic monograph on the topic, Alan Emery and Francesco Muntoni are joined by Rosaline Quinlivan, Consultant in Neuromuscular Disorders, to provide a thorough update on all aspects of the disorder. Recent understanding of the nature of the genetic defect responsible for Duchenne Muscular Dystrophy and isolation of the protein dystrophin has led to the development of new theories for the disease's pathogenesis. This new edition incorporates these advances from the field of molecular biology, and describes the resultant opportunities for screening, prenatal diagnosis, genetic counselling and from recent pioneering work with anti-sense oligonucleotides, the possibility of effective RNA therapy. Although there is still no cure for the disorder, there have been significant developments concerning the gene basis, publication of standards of care guidelines, and improvements in management leading to significantly longer survival, particularly with cardio-pulmonary care. The authors also investigate other forms of pharmacological, cellular and gene therapies. Duchenne Muscular Dystrophy will be essential reading not only for scientists and clinicians, but will also appeal to therapists and other professionals involved in the care of patients with muscular dystrophy. |
| duchenne muscular dystrophy occupational therapy: The Occupational Therapy Handbook: Practice Education Tracey Polglase, Rachel Treseder, 2012 Written specifically for occupational therapy students, newly qualified occupational therapists and educators and is a useful reference guide for academic tutors. The Occupational Therapy Handbook reflects modern day occupational therapy practice and education. The editors have created a current user-friendly text book specifically in relation to Practice Education, particularly in light of the developing role of occupational therapy in current practice. Many developments in practice education have re-focussed the value that the profession places on occupation, particularly in role emerging placements and expanding areas of practice. These developments are captured in this text. Other texts that have been produced have predominantly had a multi-professional focus and not addressed all the key occupational therapy issues in the depth required.There is always something to learn, irrespective of your level of expertise. |
| duchenne muscular dystrophy occupational therapy: Muscular Dystrophy National Institute of Neurological Diseases and Stroke, 1971 |
| duchenne muscular dystrophy occupational therapy: Conditions in Occupational Therapy Ben Atchison, Diane Dirette, 2023-04-03 This updated 6th Edition is fully aligned with the most current DSM-5 and Occupational Therapy Practice Framework, 4th Edition, and adds new chapters reflecting recent advances in the management of infectious diseases, general deconditioning, musculoskeletal pain, amputations, and sickle cell anemia. Each chapter follows a consistent format, presenting an opening case followed by descriptions and definitions, etiology, incidence and prevalence, signs and symptoms, diagnosis, course and prognosis, medical/surgical management, impact on occupational performance, and two case illustrations. Rounded out with robust instructor resources and new full-color imagery, this bestselling resource is an essential tool for today’s occupational therapy and occupational therapy assistant students. |
| duchenne muscular dystrophy occupational therapy: Pediatric Skills for Occupational Therapy Assistants E-Book Jean W. Solomon, 2020-07-12 - NEW! Every Moment Counts content is added to The Occupational Therapy Process chapter, promoting pediatric mental health. - NEW! Coverage of educational expectations is added to the Educational System chapter. - NEW! Coverage of signature constraint-induced movement therapy (CIMT) is added to Cerebral Palsy chapter. - NEW photographs and illustrations are added throughout the book. - NEW video clips on the Evolve companion website show the typical development of children/adolescents. - NEW! Extensive assessment and abbreviations appendices are added to Evolve. - NEW! Expanded glossary is added to Evolve. |
| duchenne muscular dystrophy occupational therapy: Duchenne Muscular Dystrophy Jeffrey S. Chamberlain, Thomas A. Rando, 2006-02-27 Duchenne Muscular Dystrophy (DMD) is one of the most prevalent genetic disorders of childhood and currently stands as an incurable condition. This authoritative guide provides a clear overview of the latest current and experimental approaches to the treatment of DMD and examines the clinical, genetic, and pathophysiological aspects of the disease i |
| duchenne muscular dystrophy occupational therapy: Duchenne Muscular Dystrophy Samuel Alexandre Almeida Honorio, 2015-04-01 A child with Duchenne Muscular Dystrophy (DMD) faces a childhood and adolescence with a disability that develops gradually. This book intends to expose the problems of children with DMD. The authors discuss situations related to the disease in an attempt to provide some quality and improvement of life for those affected since DMD is a degenerative disease which affects muscle. This book offers a historical study of muscular dystrophy. It also shows some profiles of excellent clinicians and scientists that have contributed to this book with a description of muscular dystrophy from the clinical picture, to the latest techniques in genetics. Also included in the chapters are resolutions of several approaches to DMD, like scales, in order to anticipate how to manage the disease. This book relates some techniques of moderate exercise, like Yoga and water exercises, that are compliable with some advantages in mobility. The book concludes with some current trends and what can be done in the future. This book can be a good read to everyone that is interested in DMD, and also for the ones who know or provide care for those with this terrible disease. |
| duchenne muscular dystrophy occupational therapy: Occupational Therapy in Oncology and Palliative Care Jill Cooper, 2013-07-08 Now in its second edition, this is the only book on occupational therapy in oncology and palliative care. It has been thoroughly updated, contains new chapters, and like the first edition will appeal to a range of allied health professionals working with patients with a life-threatening illness. The book explores the nature of cancer and challenges faced by occupational therapists in oncology and palliative care. It discusses the range of occupational therapy intervention in symptom control, anxiety management and relaxation, and the management of breathlessness and fatigue. The book is produced in an evidence-based, practical, workbook format with case studies. New chapters on creativity as a psychodynamic approach; outcome measures in occupational therapy in oncology and palliative care; HIV-related cancers and palliative care. |
| duchenne muscular dystrophy occupational therapy: Cases in Pediatric Occupational Therapy Susan Cahill, Patricia Bowyer, 2024-06-01 Cases in Pediatric Occupational Therapy: Assessment and Intervention is designed to provide a comprehensive collection of case studies that reflects the scope of current pediatric occupational therapy practice. Drs. Susan Cahill and Patricia Bowyer, along with more than 50 contributors, begin each section with an introduction to the practice setting and direct instructors and students to additional resources for more information. The text includes more than 40 cases that include client overviews, relevant history and background information; information regarding the analysis of occupational performance; information about progress in treatment; and questions to promote the development and refinement of clinical reasoning skills. Cases are presented from various practice settings, including: The neonatal intensive care unit Early intervention School systems Outpatient services Hospital-based settings Mental health settings Community settings Each case included in Cases in Pediatric Occupational Therapy is written by professionals with first-hand experience working with pediatric clients from the specific practice setting, and it aligns with the occupational therapy process represented in the AOTA’s Occupational Therapy Practice Framework, Third Edition. In addition, supplemental information, photographs, and video clips help to bring the cases to life. Included with the text are online supplemental materials for faculty use in the classroom. Cases in Pediatric Occupational Therapy will guide occupational therapy students, faculty, and practitioners through effective clinical decision making during the selection of assessment procedures and the development of client-centered and context-specific intervention plans. |
| duchenne muscular dystrophy occupational therapy: Disorders of Voluntary Muscle George Karpati, David Hilton-Jones, Robert C. Griggs, 2001-07-12 Rewritten and redesigned, this remains the one essential text on the diseases of skeletal muscle. |
| duchenne muscular dystrophy occupational therapy: PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR DUCHENNE MUSCULAR DYSTROPHY Edenilson Brandl, Duchenne Muscular Dystrophy (DMD) is a life-altering genetic disorder that affects the physical, emotional, and psychological well-being of individuals and their families. It brings with it a range of physical challenges, from progressive muscle weakness to chronic pain, but also a host of emotional and mental health issues, such as depression, anxiety, and feelings of loss or inadequacy. As advances in medical science allow individuals with DMD to live longer, the importance of addressing their mental health becomes increasingly evident. This book aims to bridge the gap between the physical and psychological care of those affected by DMD, offering practical tools through Cognitive Behavioral Therapy (CBT) to help manage the emotional and psychological effects of living with this chronic condition. By combining insights into the biology and genetics of DMD with CBT techniques, this book offers a holistic approach to addressing both the physical and mental health challenges that accompany the disorder. The topics within this book range from an introduction to the basics of genetics and epigenetics to specific CBT tools designed to help individuals and their families navigate the emotional complexities of living with DMD. Whether you are a healthcare provider, caregiver, or someone affected by Duchenne Muscular Dystrophy, this resource will provide you with strategies for coping with the psychological impacts, fostering resilience, and improving overall well-being. By focusing on both the scientific and therapeutic aspects of DMD, we hope to offer a well-rounded approach to the treatment and support of those living with this condition. This book is designed to be a practical guide, filled with actionable steps, coping mechanisms, and a deep understanding of the cognitive and emotional needs that arise from living with a degenerative condition. We believe that with the right psychological support, it is possible to manage not just the physical aspects of DMD, but also to foster emotional strength and mental resilience. This is not just about surviving with DMD; it is about thriving, finding hope, and cultivating a life filled with meaning and purpose despite the challenges. We sincerely hope that this book will serve as a valuable resource for those affected by DMD and for professionals seeking to enhance their understanding and care for this community. |
| duchenne muscular dystrophy occupational therapy: Genetic Neuromuscular Disorders Corrado Angelini, 2017-10-05 This updated and expanded new edition of a successful book describes genetic diagnostic entities of neuromuscular disorders. Neuromuscular syndromes are presented clinically either as a case study or as an overview from the literature, accompanied by text presenting molecular defects, and differential diagnosis. This collection of neuromuscular disorders features the differential clinical phenotypes related to each genotype and are representative of the whole spectrum of a genetic muscle disorder, helping the clinician and neuromuscular physician to make a diagnosis. Key points for each genetic disease are identified to suggest treatment, when available, or the main clinical exams useful in follow-up of patients. Genetic Neuromuscular Disorders: A Case-Based Approach is aimed at neuromuscular physicians and neurology residents. |
| duchenne muscular dystrophy occupational therapy: Mosby's Q & A Review for the Occupational Therapy Board Examination - E-Book Patricia Bowyer, Dorothy P. Bethea, 2007-03-27 This book/CD-ROM review package gives you the necessary tools you need to successfully prepare for the National Board for Occupational Therapy Certification Examination. With this overall package you can study for the NBCOT certification exam and feel more confident you are prepared to take the test. The text includes 800 multiple-choice review questions written to parallel the content and format of the exam. The accompanying CD, with all 800 questions, enables you to generate an unlimited number of practice tests to simulate the actual testing situation. - Questions focus on the Occupational Therapy Practice Framework (OTPF) as well as the results from the practice analysis completed by NBCOT. - Questions cross the spectrum of occupational therapy process - evaluation, intervention planning, intervention, service management, and outcomes of a variety of populations including pediatric, mental health, and adult physical and neurological conditions. - Practice environments such as the community, school-based and hospital based care are covered throughout. - Specific references for every question and a comprehensive list of resources are provided at the end of the book for further study. - Rationales for answer options are provided to explain why the correct answer is right and the other choices are wrong. - Provides information on the format of the NBCOT exam and tips for studying and answering test questions. |
| duchenne muscular dystrophy occupational therapy: Early's Physical Dysfunction Practice Skills for the Occupational Therapy Assistant E-Book Mary Beth Patnaude, 2021-01-15 - NEW! Intervention Principles for Feeding and Eating chapter is added to this edition. - NEW! Reorganization of all chapters aligns content more closely with the Occupational Therapy Practice Framework. - NEW! Combined chapters make the material more concise and easier to navigate. |
| duchenne muscular dystrophy occupational therapy: Neuromuscular Disorders in the Adult David Hilton-Jones, Jane Freebody, Jane Stein, 2011-01-13 A practical handbook for anyone caring for people with progressive disability due to muscle wasting conditions. |
| duchenne muscular dystrophy occupational therapy: Muscular Dystrophy Corrado Angelini, 2013 Muscular dystrophies include a heterogeneous series of diseases that range from childhood to adult onset cases, of difficult diagnosis and treatment. This book presents the state of the art in muscular dystrophies, after the molecular revolution. |
| duchenne muscular dystrophy occupational therapy: Multiple Voices in Academic and Professional Discourse Sergio Maruenda Bataller, 2011-05-25 The demands of today’s society for greater specialization have brought about a profound transformation in the humanities, which are not immune to the competitive pressure to meet new challenges that are present in other sectors. Thus, lecturers and researchers in modern languages and applied linguistics departments have made great efforts to design syllabi and materials more attuned to the competences and requirements of potential working environments. At the same time, linguists have attempted to apply their expertise in wider areas, creating research institutes that focus on applying language and linguistics in different contexts and offering linguistic services to society as a whole. This book attempts to provide a global view of the multiple voices involved in interdisciplinary research and innovative proposals in teaching specialized languages while offering contributions that attempt to fill the demands of a varied scope of disciplines such as the sciences, professions, or educational settings. The chapters in this book are made up of current research on these themes: discourse analysis in academic and professional genres, specialized translation, lexicology and terminology, and ICT research and teaching of specialized languages. |
| duchenne muscular dystrophy occupational therapy: Duchenne Muscular Dystrophy Helen Posselt, 2011 |
| duchenne muscular dystrophy occupational therapy: Occupational Therapy and Physical Dysfunction Ann Turner, Margaret Foster, Sybil E. Johnson, 1996 This book provides a comprehensive introduction to the role and work of the occupational therapist with regard to physical illness or disability. The text links OT theory with day-to-day practice. |
| duchenne muscular dystrophy occupational therapy: Occupational Therapy for Children - E-Book Jane Case-Smith, Jane Clifford O'Brien, 2013-08-07 The sixth edition of Occupational Therapy for Children maintains its focus on children from infancy to adolescence and gives comprehensive coverage of both conditions and treatment techniques in all settings. Inside you’ll discover new author contributions, new research and theories, new techniques, and current trends to keep you in step with the changes in pediatric OT practice. This edition provides an even stronger focus on evidence-based practice with the addition of key research notes and explanations of the evidentiary basis for specific interventions. Unique Evolve Resources website reinforces textbook content with video clips and learning activities for more comprehensive learning. Case studies help you apply concepts to actual situations you may encounter in practice. Evidence-based practice focus reflects the most recent trends and practices in occupational therapy. Unique! Chapter on working with adolescents helps you manage the special needs of this important age group. Unique! Research Notes boxes help you interpret evidence and strengthen your clinical decision-making skills. Video clips on a companion Evolve Resources website reinforce important concepts and rehabilitation techniques. |
| duchenne muscular dystrophy occupational therapy: Theoretical Basis of Occupational Therapy Mary Ann McColl, 2003 Theoretical Basis of Occupational Therapy, Second Edition has been completely updated and revised to offer the most information in the most efficient way to occupational therapists. This exciting new edition begins with a discussion of the uses and applications of occupational therapy theory and offers ways of thinking about and organizing the theory. It includes an extensive annotated bibliography of occupational therapy theory. Significant developments in occupational therapy theory over the past 25 years are classified and discussed in a user-friendly, organized format. One of the essential components to Theoretical Basis of Occupational Therapy, Second Edition is the taxonomy of occupational therapy theory, which organizes the mass of theory into a filing system that is consistent with how occupational therapists think about occupation and about humans and environment. Perfect for the practicing occupational therapist or student, this necessary text contains volumes of information accessible in one convenient place. Five Theory Areas Covered Inside: Physical determinants of occupation Psychological-emotional determinants of occupation Cognitive-neurological determinants of occupation Socio-cultural determinants of occupation Environmental determinants of occupation |
| duchenne muscular dystrophy occupational therapy: Occupational Therapy for Children and Adolescents - E-Book Jane Case-Smith, 2014-10-23 - NEW video clips and case studies on the Evolve website demonstrate important concepts and rehabilitation techniques. - NEW Autism Spectrum Disorder chapter contains important information for OTs not addressed in other texts. - NEW Neuromotor: Cerebral Palsy chapter addresses the most prevalent cause of motor dysfunction in children. - NEW Adolescent Development chapter helps you manage the special needs of teenagers and young adults. - NEW contemporary design includes full-color photos and illustrations. - UPDATED content and references ensure you have access to the comprehensive, research-based information that will guide you in making optimal decisions in practice. |
| duchenne muscular dystrophy occupational therapy: The Special Education Handbook Michael Farrell, 2012-08-06 'What a terrific resource: comprehensive and current, this Handbook is a vital acquisition for all involved in special education programs. Dr Farrell writes clearly and with a practical flair ... Highly recommended.' – Michael Arthur-Kelly PhD, Associate Professor and Director, Special Education Centre, University of Newcastle, Australia This acclaimed, bestselling and comprehensive guide, now in a fully updated fourth edition, is an essential reference book for anyone involved with special education. All entries have been reviewed to reflect current practice and the book is enriched with extra resources, including references to useful Internet sites. Focusing on current educational frameworks in the United Kingdom and the United States of America, the author has gathered into one A to Z volume a wide range of information essential to good practice in mainstream and special schools. A thematic index helps the reader plot a course through topics of interest. The broad themes and areas covered are: basic terms, ideas and values venues relating to special education, and school organisation roles and responsibilities individual differences among learners with disabilities and disorders curriculum and assessment, resources and technology pedagogy and classroom organisation therapy and care. Presented in a handy quick reference format The Special Education Handbook also provides a coherent account of the complexities of special education, combining a wealth of practical guidance with the latest research findings. This clear and concise Handbook is indispensable for all those involved in special education, including teachers, teaching assistants, parents, administrators and others. |
| duchenne muscular dystrophy occupational therapy: Pedretti's Occupational Therapy - E-Book Heidi McHugh Pendleton, Winifred Schultz-Krohn, 2024-03-25 Gain the knowledge and skills you need to treat clients/patients with physical disabilities! Pedretti's Occupational Therapy: Practice Skills for Physical Dysfunction, 9th Edition uses a case-based approach threaded through each chapter to provide a solid foundation in evaluation, intervention, and clinical reasoning. The text continues to support the entry-level occupational therapist and the experienced occupational therapist focused on expanding skills and knowledge. With the OT practice framework as a guide, you will focus on the core concepts and central goals of client care. And by studying threaded case studies, you will learn to apply theory to clinical practice. Written by a team of expert OT educators and professionals led by Heidi McHugh Pendleton and Winifred Schultz-Krohn, this edition includes an eBook free with each new print purchase, featuring a fully searchable version of the entire text. - UNIQUE! Threaded case studies begin and are woven through each chapter, helping you develop clinical reasoning and decision-making skills and to apply concepts to real-life clinical practice. - UNIQUE! Ethical Considerations boxes examine the obligation to collaborate with clients on their care, using evidence to select treatment options. - UNIQUE! OT Practice Notes convey important tips and insights into professional practice. - Illustrated, evidence-based content provides a foundation for practice, especially relating to evaluation and intervention. - Information on prevention — rather than simply intervention or treatment — shows how OTs can take a proactive role in client care. - Focus on health promotion and wellness addresses the role of the occupational therapist in what the AOTA has identified as a key practice area. - Content on cultural and ethnic diversity is included in every chapter, reflecting occupational therapy's commitment to this important issue. - Key terms, chapter outlines, and chapter objectives highlight the information you can expect to learn from each chapter. - NEW! Updated content reflects the new Occupational Therapy Practice Framework (OTPF) and the new Accreditation Council for Occupational Therapy Education (ACOTE) curriculum standards along with the new AOTA Code of Ethics. - NEW! Implementation of Occupational Therapy Services, Therapeutic Use of Self, Telehealth, and Lifestyle Redesign chapters are added to this edition. - NEW! Content on the role of the occupational therapist with clients/patients who experience long COVID. - NEW! Inside look at the lived experience of disability covers the intersection of disability perspectives and occupational justice, along with the implications for Occupational Therapy. - NEW! Updated Mindfulness chapter is expanded to cover the wide use of mindfulness in occupational therapy for those with physical disabilities. - NEW! eBook version – included with print purchase – allows you to access all of the text, figures, and references from the book on a variety of devices, and offers the ability to search, customize your content, make notes and highlights, and have the content read aloud. |
| duchenne muscular dystrophy occupational therapy: Occupational Therapy Examination Review Guide Caryn R Johnson, Tina DeAngelis, Mary Muhlenhaupt, 2015-05-27 Rely on the guide that has helped thousands of students pass their exams with exactly the practice they need. The 4th Edition mirrors the latest NBCOT exam blueprint and the question formats—multiple-choice and simulation at the difficulty level and in the decision-making style of the actual exam. More than 1,000 questions in five practice exams help you identify your strengths and weaknesses while you improve your test-taking performance. |
| duchenne muscular dystrophy occupational therapy: A Guide to Duchenne Muscular Dystrophy Janet Hoskin, 2017-12-14 The prognosis for individuals with Duchenne Muscular Dystrophy (DMD) is improving, with some men with DMD living into their 30s and 40s. More vital than ever, this book helps teachers and parents to support children and young people with DMD with their education and transition into adulthood. Leading experts on DMD explain Duchenne and its impact in easy-to-understand terms. Going beyond physical management, particular focus is put on learning and behavioural issues, including speech delay and difficulty learning to read, as well as common comorbid conditions, such as ADHD, autism and OCD. Raising aspirations, the book gives guidance on effective support in the classroom and advice on the transition to adulthood, employment and independent living. |
| duchenne muscular dystrophy occupational therapy: The Pediatric Upper Extremity Joshua M. Abzug, Scott H. Kozin, Dan A. Zlotolow, 2014-11-22 Sub-specialization within pediatric orthopedics is growing, in part due to the development of free-standing children's hospitals and the desire by patients and their parents to have experts care for them. We are at the forefront of a trend in physicians classifying themselves as pediatric upper extremity surgeons. Numerous pediatric hospitals now have or are recruiting physicians to focus their practice in this area. Historically, these issues were treated by general orthopedic surgeons, adult hand surgeons, pediatric orthopedic surgeons, or plastic surgeons. However, none of these professionals treat the entirety of pediatric upper extremity pathology, and no single reference has focused on the treatment of the pediatric upper extremity as a whole. For example, fractures have typically been written about in pediatric textbooks, while tendon and nerve injuries are covered in adult hand textbooks. This textbook is a comprehensive, illustrated reference that discusses all aspects of the pediatric upper extremity, from embryology and functional development to nerve injuries, trauma, tumors, burns, sports injuries and more. |
| duchenne muscular dystrophy occupational therapy: PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR HEMOPHILIA Edenilson Brandl, Living with a chronic condition like hemophilia is not just a physical challenge; it impacts every aspect of life—emotional, psychological, and social. Hemophilia, a genetic disorder affecting the blood’s ability to clot properly, requires individuals to navigate a complex web of medical treatments, lifestyle adjustments, and emotional hurdles. For many, the weight of managing a genetic condition can lead to feelings of isolation, anxiety, and depression. This book, Psychological Support by Cognitive Behavioral Therapy for Hemophilia, was written with the purpose of providing a comprehensive approach to address not only the physical but also the psychological aspects of living with hemophilia. By merging insights from genetics, biology, and psychology, particularly through the lens of Cognitive Behavioral Therapy (CBT), this book seeks to empower individuals with hemophilia to develop coping strategies, manage emotional distress, and lead fulfilling lives despite their condition. Cognitive Behavioral Therapy has been widely recognized as an effective therapeutic approach for managing a variety of mental health challenges, and it offers valuable tools for those grappling with the emotional and psychological burdens of chronic illness. This book covers essential topics such as trauma, genetic counseling, independence in one’s genetic journey, and the practical application of CBT techniques. By addressing both the biological underpinnings of hemophilia and the cognitive and emotional toll it takes, this book aims to create a balanced and supportive guide for patients, caregivers, and mental health professionals alike. In the chapters that follow, we explore the intricate connection between mind and body, offering both theoretical knowledge and practical tools to manage the emotional impact of hemophilia. From learning how to manage pain and fatigue, to developing strategies for mental resilience and emotional regulation, this book is designed to be a go-to resource for anyone affected by hemophilia. It is my hope that this book provides a source of comfort, guidance, and empowerment to those living with hemophilia, helping them to navigate their journey with greater confidence, mental fortitude, and emotional well-being. |
| duchenne muscular dystrophy occupational therapy: Neurological, Psychiatric, and Developmental Disorders Institute of Medicine, Board on Global Health, Committee on Nervous System Disorders in Developing Countries, 2001-01-01 Brain disordersâ€neurological, psychiatric, and developmentalâ€now affect at least 250 million people in the developing world, and this number is expected to rise as life expectancy increases. Yet public and private health systems in developing countries have paid relatively little attention to brain disorders. The negative attitudes, prejudice, and stigma that often surround many of these disorders have contributed to this neglect. Lacking proper diagnosis and treatment, millions of individual lives are lost to disability and death. Such conditions exact both personal and economic costs on families, communities, and nations. The report describes the causes and risk factors associated with brain disorders. It focuses on six representative brain disorders that are prevalent in developing countries: developmental disabilities, epilepsy, schizophrenia, bipolar disorder, depression, and stroke. The report makes detailed recommendations of ways to reduce the toll exacted by these six disorders. In broader strokes, the report also proposes six major strategies toward reducing the overall burden of brain disorders in the developing world. |
| duchenne muscular dystrophy occupational therapy: Conceptual Foundations of Occupational Therapy Practice Gary Kielhofner, 2009-06-19 PREPARE YOUR OT STUDENTS TO BECOME OT THINKERS. Thoroughly revised and updated, the 4th Edition of this groundbreaking text traces the historical development of the foundations of modern occupational therapy theory; examines its status today; and looks to its future. Dr. Kielhofner compares and contrasts eight well-known models, using diagrams to illustrate their practical applications and to highlight their similarities and differences. Well organized chapters are supported by extensive references. |
| duchenne muscular dystrophy occupational therapy: Respiratory Muscle Training Alison McConnell, 2013-04-18 Respiratory Muscle Training: theory and practice is the world's first book to provide an everything-you-need-to-know guide to respiratory muscle training (RMT). Authored by an internationally-acclaimed expert, it is an evidence-based resource, built upon current scientific knowledge, as well as experience at the cutting-edge of respiratory training in a wide range of settings. The aim of the book is to give readers: 1) an introduction to respiratory physiology and exercise physiology, as well as training theory; 2) an understanding of how disease affects the respiratory muscles and the mechanics of breathing; 3) an insight into the disease-specific, evidence-based benefits of RMT; 4) advice on the application of RMT as a standalone treatment, and as part of a rehabilitation programme; and finally, 5) guidance on the application of functional training techniques to RMT. The book is divided into two parts – theory and practice. Part I provides readers with access to the theoretical building blocks that support practice. It explores the evidence base for RMT as well as the different methods of training respiratory muscles and their respective efficacy. Part II guides the reader through the practical implementation of the most widely validated form of RMT, namely inspiratory muscle resistance training. Finally, over 150 Functional RMT exercises are described, which incorporate a stability and/or postural challenge – and address specific movements that provoke dyspnoea. Respiratory Muscle Training: theory and practice is supported by a dedicated website (www.physiobreathe.com), which provides access to the latest information on RMT, as well as video clips of all exercises described in the book. Purchasers will also receive a three-month free trial of the Physiotec software platform (via www.physiotec.ca), which allows clinicians to create bespoke training programmes (including video clips) that can be printed or emailed to patients. - Introductory overviews of respiratory and exercise physiology, as well as training theory - Comprehensive, up-to-date review of respiratory muscle function, breathing mechanics and RMT - Analysis of the interaction between disease and respiratory mechanics, as well as their independent and combined influence upon exercise tolerance - Analysis of the rationale and application of RMT to over 20 clinical conditions, e.g., COPD, heart failure, obesity, mechanical ventilation - Evidence-based guidance on the implementation of inspiratory muscle resistance training - Over 150 functional exercises that incorporate a breathing challenge - www.physiobreathe.com - access up-to-date information, video clips of exercises and a three-month free trial of Physiotec's RMT exercise module (via www.physiotec.ca) |
| duchenne muscular dystrophy occupational therapy: Pediatric Nursing Care: A Concept-Based Approach Linnard-Palmer, 2017-08-25 P: Pediatric Nursing Care: A Concept-Based Approach teaches undergraduate nursing students the need to know information for working in a pediatric nursing environment. |
| duchenne muscular dystrophy occupational therapy: Adult Physical Conditions Amy J Mahle, Amber L Ward, 2018-04-17 The go-to text/reference for class, clinical, and practice! A who’s who of experts and educators brings you practical, in-depth coverage of the most common adult conditions and the corresponding evidence-based occupational therapy interventions. Written for OTAs to meet their unique needs, this approach combines theory with the practical, evidence-based functional content that develops the critical-thinking and clinical-reasoning skills that are the foundation for professional, knowledgeable, creative, and competent practice. |
| duchenne muscular dystrophy occupational therapy: Managing Adrenal Insufficiency , 1992 |
| duchenne muscular dystrophy occupational therapy: Constraint-induced Movement Therapy G. Uswatte, 2006 Constraint-Induced Movement therapy (CI therapy) is a behavioral approach to neurorehabilitation based on a program of neuroscience experiments conducted with monkeys. Evidence has accumulated to support the efficacy of CI therapy for rehabilitating hemiparetic arm use in individuals with chronic stroke. This book addresses the related topics. |
| duchenne muscular dystrophy occupational therapy: Myopathies, An Issue of Neurologic Clinics Mazen Dimachkie, 2014-08-28 Congential myopathies, Muscular dystropies, Glycogen storage diseases of muscle, and Idiopathic and Inflammatory myopathies are presented in this volume of Neurologic Clinics. Topics include: Muscle channelopathies; Pompe disease; Congenital myopathies and muscular dystrophies; Duchenne and Becker muscular dystrophies; Distal myopathies; Limb-girdle muscular dystrophy; Fascioscapulomuneral muscular dystrophy; Myotonic dystrophy; Metabolic and mitochondrial myopathies; Sporadic inclusion body myositis; Toxic myopathies; Idiopathic Inflammatory myopathies; Approach to muscle disease. |
| duchenne muscular dystrophy occupational therapy: Meeting the Physical Therapy Needs of Children Susan K Effgen, 2012-09-12 Ensure children with disabilities and special healthcare needs achieve their full potential. Noted authority Susan Effgen and a team of scholars and clinical experts explore the role of the physical therapist in meeting the needs of children and their families in a culturally appropriate context using a family-centered, abilities-based model. The 2nd Edition of this landmark text has been thoroughly revised, updated, and expanded to encompass all of today's new theories, clinical applications, and skills. From the major body systems to assistive technology and intervention support, you'll develop the clinical knowledge you need to provide a child with the very best care from initial examination to graduation from your services. |
| duchenne muscular dystrophy occupational therapy: Hand Therapy in Children with Cerebral Palsy: A Practical Approach for Parents, Therapists, and Other Healthcare Professionals Handling Children with Mpt Priya Reddappa, 2019-10-16 The book, Hand therapy in children with cerebral palsy, is a concise practical book for parents, practising paediatric therapists, and other healthcare professionals. The book is an informative resource on the practical aspects of improving hand function in children with the spastic type of cerebral palsy including, monoplegia, hemiplegia, diplegia, and spastic quadriplegia. The book deals in detail with the typical development, evaluation, and identification of abnormal patterns of hand function in children with spastic cerebral palsy. The concepts of therapeutic intervention and handling of the child have been well explained and presented with pictures wherever necessary. This book is concise and well organized making it easy to read. Glossary has been provided at the end of the book, defining the key terms.Priya Reddappa, MPT (Paediatric Neurology), APGDCR-PV, is a postgraduate Paediatric Physical Therapist, and a licensed Life Member of Indian Association of Physiotherapists (MIAP). She completed her Masters in Physical Therapy from The Tamilnadu Dr M.G.R Medical University and has experience as a Physical Therapist over 12 years in various clinical areas of Orthopaedics, Neurology, Cardiorespiratory, and Neuropaediatric conditions. As a clinically driven professional, she has worked in paediatric acute care (inpatient settings), outpatient settings, special school, and paediatric rehabilitation centres. She has handled paediatric patients at Apollo Children's Hospital, Chennai for over five years. She gained experience as a Research Clinical Evaluator for Apollo Hospitals Education and Research Foundation for a Clinical Trial on Duchenne Muscular Dystrophy for about four years. She has published two research papers in International journals regarding hand function in children with cerebral palsy, and adults with spinal cord injury. |
Occupational Therapy - CureDuchenne
Occupational therapy for Duchenne and Becker muscular dystrophy is unique and requires specific knowledge of the disorder to provide appropriate treatment.
Duchenne Muscular Dystrophy - The OT Practice
What is Duchenne Muscular Dystrophy? What are the common challenges caused by Duchenne Muscular Dystrophy? How can occupational therapy help a child with Duchenne Muscular …
Rehabilitation Standards of Care for Duchenne Muscular …
- Interventions require comprehensive team management, including physical therapy, postural correction, orthotic intervention and splinting, wheelchair and bed enhancements that allow …
Physiotherapy & Occupational Therapy Guidance for DMD
This guide outlines physiotherapy and occupational therapy in Duchenne muscular dystrophy (DMD) and explains their specific roles at different stages of the disease.
Occupational Therapy - Parent Project Muscular Dystrophy
The goals of occupational therapy are to maximize functional independence in everyday activities, in addition to addressing school tasks, work or vocational life, leisure skills, hobbies, and can …
Occupational therapy for Duchenne muscular dystrophy – Muscular…
Jun 21, 2024 · Occupational therapy can help people with Duchenne muscular dystrophy (DMD) maintain and improve the skills needed for managing daily life. DMD is a genetic disorder …
Occupational Therapy - AUSNMD
For children and adolescents with a neuromuscular condition, physiotherapy is focused on gross motor skills, mobility and respiratory function. Occupational therapy is focused on maximising …
Delivery of physiotherapy and occupational therapy standards of …
Mar 1, 2025 · Duchenne muscular dystrophy is a neuromuscular disorder which has benefited from the implementation of key management strategies embedded in International Standards …
DMD Care UK’s new guide to help you get the best standards of ...
Feb 10, 2025 · Physiotherapy helps keep muscles strong and flexible, so people with DMD can move and do as much as possible. Occupational therapy aims to make everyday tasks …
Occupational Therapy and Duchenne Muscular Dystrophy
Duchenne muscular dystrophy is an X-linked recessive muscle-wasting dis- order, involving progressive muscle weakness which normally becomes evident before the age of fi ve years …
Occupational Therapy - CureDuchenne
Occupational therapy for Duchenne and Becker muscular dystrophy is unique and requires specific knowledge of the disorder to provide appropriate treatment.
Duchenne Muscular Dystrophy - The OT Practice
What is Duchenne Muscular Dystrophy? What are the common challenges caused by Duchenne Muscular Dystrophy? How can occupational therapy help a child with Duchenne Muscular …
Rehabilitation Standards of Care for Duchenne Muscular …
- Interventions require comprehensive team management, including physical therapy, postural correction, orthotic intervention and splinting, wheelchair and bed enhancements that allow …
Physiotherapy & Occupational Therapy Guidance for DMD
This guide outlines physiotherapy and occupational therapy in Duchenne muscular dystrophy (DMD) and explains their specific roles at different stages of the disease.
Occupational Therapy - Parent Project Muscular Dystrophy
The goals of occupational therapy are to maximize functional independence in everyday activities, in addition to addressing school tasks, work or vocational life, leisure skills, hobbies, and can …
Occupational therapy for Duchenne muscular dystrophy – Muscular…
Jun 21, 2024 · Occupational therapy can help people with Duchenne muscular dystrophy (DMD) maintain and improve the skills needed for managing daily life. DMD is a genetic disorder …
Occupational Therapy - AUSNMD
For children and adolescents with a neuromuscular condition, physiotherapy is focused on gross motor skills, mobility and respiratory function. Occupational therapy is focused on maximising …
Delivery of physiotherapy and occupational therapy standards of …
Mar 1, 2025 · Duchenne muscular dystrophy is a neuromuscular disorder which has benefited from the implementation of key management strategies embedded in International Standards …
DMD Care UK’s new guide to help you get the best standards of ...
Feb 10, 2025 · Physiotherapy helps keep muscles strong and flexible, so people with DMD can move and do as much as possible. Occupational therapy aims to make everyday tasks …
Occupational Therapy and Duchenne Muscular Dystrophy
Duchenne muscular dystrophy is an X-linked recessive muscle-wasting dis- order, involving progressive muscle weakness which normally becomes evident before the age of fi ve years …
